You did it!
We've now reached our goal of 100 percent newborn screening of spinal muscular atrophy (SMA) in all 50 states with the addition of Hawaii at the start of 2024.
You made this accomplishment possible by advocating and making the case at the state and national level for universal newborn screening. Your success in advocating means that babies born today in all 50 states with SMA will receive an early diagnosis and can benefit from timely access to powerful treatments and care.
Thank you!
While we pause to recognize and celebrate the power of our community in reaching this great achievement of 100% newborn screening, we also recommit to our next important goals.
We are looking forward in 2024 to supporting new research breakthroughs that will lead to more treatments focused on improving strength and restoring function. We will be advancing several combination muscle treatments through final clinical trial stages, and we will be improving local care.
We will not stop until we have reached a cure.
Thank you for everything you do to help improve the lives of everyone impacted by SMA.
P.S. Click here to access "I Advocated for SMA Newborn Screening" graphics that you can share on social media to acknowledge your great work.