On Thursday, September 18, executives from the Barney & Barney Foundation presented Cure SMA with a check for $20,000 to support spinal muscular atrophy research and family support. Barney & Barney was started in San Diego in 1909 by two brothers. Since then, they have become one of the largest brokerages in the United States. […]
Cure SMA Receives Generous Donation from Barney & Barney Read More »
Over the last decade, we’ve seen many advances in spinal muscular atrophy research, from new techniques in gene therapy to drugs that show promise in slowing or stopping the progress of the disease. With such great promise in the research landscape, we know that no single group can develop a treatment for SMA alone—it requires
Catch Up on Research News from our Family Friendly Poster Session Read More »
It’s only September, but the holidays are right around the corner! Cure SMA and Isis Pharmaceuticals are teaming up for a holiday card contest. This contest is open to children with spinal muscular atrophy and their siblings. We will be posting a gallery of all entries on our Facebook page. We’ll also be selecting several
Cure SMA and Isis Announce Holiday Card Contest TEST Read More »
It’s only September, but the holidays are right around the corner! Cure SMA and Isis Pharmaceuticals are teaming up for a holiday card contest. This contest is open to children with spinal muscular atrophy and their siblings. We will be posting a gallery of all entries on our Facebook page. We’ll also be selecting several
Cure SMA and Isis Announce Holiday Card Contest Read More »
We’re excited to announce that enrollment for the NeuroNEXT biomarker study is now fully filled. This means that this critical study can continue to progress and teach us more about finding a cure for SMA. Cure SMA provided funding for this trial, and we also worked with lead investigator Stephen Kolb, MD, PhD, and his team
Spinal Muscular Atrophy Biomarker Study Reaches Enrollment Goals Read More »
The Newborn Screening Saves Lives Reauthorization Act (H.R. 1281) passed the House of Representatives this summer but still has not yet received a vote in the Senate. Cure SMA encourages you to call your Senators and urge them to support the passage of the Act prior to the end of the year. This legislation ensures
Cure SMA is expanding its role in spinal muscular atrophy medical affairs at the national level through its Medical Advisory Council (MAC). The MAC sets the agenda for proactive, creative, and collaborative leadership on issues that improve the quality of medical care for those affected by SMA. The focus of the Council is on educating
Applications for the Cure SMA Medical Advisory Board Due 10/1/14 Read More »
On September 5, we announced the close of our for request for proposals (RFP) for basic research. An RFP is an invitation for scientists to submit their best ideas for SMA research. They explain what they want to study, how they plan to study it, and why they think it will be effective for SMA. The
RFP Closes for Spinal Muscular Atrophy Basic Research Funding Read More »
Originally published on August 12, 2014. The SMA research group meeting, held each year as part of our Annual SMA Conference, is an anticipated event in the SMA research community. This meeting has a tangible impact on achieving our mission of a world without SMA. Over the last decade, we’ve seen many advances in SMA
Originally published on June 27, 2014. The 2014 SMA Conference brought together over 1,400 families and 250 researchers from around the world. At the conclusion of the conference, families gathered for a special opportunity to hear about the latest SMA research from the leading experts. The session addressed new advances, strategies, and challenges in SMA
