In February 1994, Barbara and Gene Trainor lost their five-month-old daughter Erin to SMA type I. Throughout the past 20 years, the Trainor family, friends, and colleagues have raised funds for Cure SMA through annual events such as the Chesapeake Crab Feast and the Chesapeake Charity Golf Classic. In addition, they have provided comfort to […]
Erin Trainor Memorial Fund Reaches Milestone Read More »
The Miller McNeil Woodruff Foundation has awarded an amazing $87,000 to Cure SMA, to help fund research that will lead to a treatment and cure for SMA and to give support to local families. This generous gift will not only help increase our research momentum, but also honors the precious life of Miller McNeil Woodruff,
Miller McNeil Woodruff Foundation Gives Generous Gift to Cure SMA Read More »
Along with funding spinal muscular atrophy research, Cure SMA provides thousands of families with vital family support and resources to help them live active, engaged and hopeful lives. Cure SMA is a resource for stable, unbiased support, offering understanding and resources when they are most needed. In just the past year: We were contacted by
Cure SMA Provides Record Number of Resources to Families Worldwide Read More »
We are excited to welcome our new members to our Medical Advisory Council. Welcome to: Julie Parsons, MD Nancy Kuntz, MD Perry Shieh, MD, PhD Randal Richardson, MD, MMS Elizabeth McNally, MD, PhD Anne Stratton, MD Oren Kupfer, MD Samuel Rosenfeld, MD Diane Murrell, LCSW Stacey Tarrant, BS, RD, LDN Terri Carry, MS, PT Our
Cure SMA Welcomes New Medical Advisory Council Committee Members Read More »
An important goal of our research funding strategy is to share scientific findings with the broader scientific community. Scientists who receive Cure SMA funding often publish their findings in peer-reviewed journals. This means that other scientists can learn from their results, which will pay dividends across the wider landscape of SMA research—allowing us to multiply
Cure SMA Funding Leads to 16 New Research Publications in 2014 Read More »
This year’s 4th Annual Hope on the Hill Congressional Dinner in Washington D.C. was a great success. Building on of this year’s Annual SMA Conference—also held in Washington D.C.—the Hope on the Hill Dinner brought together families, government, and industry leaders to work on shared goals like increasing awareness, advancing treatments for SMA, and improving
Hope on the Hill Advances Key SMA Legislative Priorities Read More »
Our strategic research approach includes four areas—basic research, drug discovery, clinical trials, and clinical care—working together toward our vision of a world without SMA. Cure SMA has invested $57 million in research since 1984, with $35 million in the past decade alone. In 2014, we provided funding to 26 different research projects across these four
Cure SMA Funds 26 Research Projects in 2014 Read More »
