Yesterday, the House of Representatives passed the American Health Care Act (AHCA). The House passed legislation included an amendment that increases funding to mitigate a potential rise in health care premiums for those with pre-existing conditions; however, concerns remain about the impact this bill could have on SMA patients’ access to care (see previous update […]
Update on the Passage of the AHCA Read More »
After a failed attempt in March, Members of Congress are trying once again to assemble legislation to repeal key parts of the Patient Protection and Affordable Care Act (ACA). The latest attempt, called the American Health Care Act (AHCA), could impact SMA patients’ access to health care services by allowing states to opt out of
Cure SMA Grassroots Alert – AHCA Read More »
Cure SMA has awarded a $140,000 research grant to Christine DiDonato, PhD, Ann & Robert H. Lurie Children’s Hospital of Chicago, for her project, “Skeletal muscle activators as potential modulators of muscular weakness in SMA.” In SMA, the ability of the muscle to contract is impacted. This proposal focuses on skeletal muscle proteins and their
