Genentech Releases SMA Community Letter
Our industry partners at Genentech recently released an SMA community letter summarizing 2022 developments and initiates. Check it out here!
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December 2022
Share Your Air Travel Concerns & Experiences for Cure SMA Report to Congress
The law that governs air travel in the United States is about to expire. Next year, Congress must consider air travel changes through a new Federal Aviation Administration (FAA) reauthorization bill. The last time the law was updated (2018), Congress included several provisions aimed at making air travel more accessible for people with disabilities. (For
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SMA Community Progress & Advocacy Featured at Cure SMA Hope on the Hill Event
Congressional leaders and key partners, supporters, and members of the spinal muscular atrophy (SMA) community celebrated SMA achievements and advocacy at Cure SMA’s 11th Annual Hope on the Hill Congressional Event. Hope on the Hill is an annual event to increase awareness about SMA and recognize policymakers and other key partners for helping to advance
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Cure SMA to Host 11th Annual Hope on the Hill Event in Washington, D.C.
On December 6th, Cure SMA will highlight the progress made in spinal muscular atrophy (SMA) and recognize the advocacy that helped lead to this success in a special event in our nation’s capital. Cure SMA has hosted an annual Hope on the Hill congressional dinner and reception in Washington, D.C. since 2010 to increase awareness
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