July 2024

Cure SMA is pleased to announce the publication of “Newborn Screening and Birth Prevalence for Spinal Muscular Atrophy in the US” in JAMA Pediatrics on July 15, 2024. This paper reports the largest data collection of infants with SMA identified by  newborn screening in the U.S. The objectives were: 1) to update the estimated birth […]

Each year, Cure SMA collaborates with our Scientific Advisory Board to plan a Special Session to be held during the Annual Research & Clinical Care Meeting. This Special Session is designed to focus on a topic that is currently of great interest to both researchers and clinicians. This year’s Special Session, “The Importance of Understanding

During the first week of June, SMA researchers and clinicians from around the world met in Austin, Texas, for the 28th Annual SMA Research & Clinical Care Meeting. Their common goals were to accelerate the pace of research into SMA treatments and achieve excellence in SMA clinical care. The annual meeting provides an opportunity for