August 2024

Community Spotlight: Viola Dwyer, SMA Community Advocate from Pennsylvania

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During this SMA Awareness Month, Cure SMA recognizes all SMA community advocates – individuals with spinal muscular atrophy (SMA) and their families – who are raising awareness about SMA and advocating for SMA community priorities throughout the year. Cure SMA advocates play a crucial role in shaping policy and raising awareness. Cure SMA spoke with […]

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Cure SMA Attends Spring 2024 Professional Organization Conferences to Promote Findings from Real World Evidence Collaboration Initiatives

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Cure SMA is pleased to announce the involvement of scientific leadership, in the 4th Scientific International Congress on SMA (March 14 – 16, 2024), the 2024 International Society for Pharmacoeconomics and Outcomes Research (ISPOR) Conference (May 5 – 8, 2024), and the Annual SMA Research & Clinical Care Meeting (June 5 – 7, 2024). Our

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Cure SMA Launches Request for Proposals for SMA Research Projects and Postdoctoral Fellowships

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Earlier this summer, at the Annual SMA Research and Clinical Care Meeting, Cure SMA highlighted six new basic research grants totalling $750,000. Cure SMA is now proud to announce another $750,000 will be awarded for additional research. With more than $85 million in funding to date in support of basic research grants and drug discovery

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August is Spinal Muscular Atrophy (SMA) Awareness Month! 

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Whether you have SMA, have a loved one with SMA, are a researcher, care provider, industry partner, or are new to the SMA community, SMA Awareness Month is a time to come together to celebrate, honor, reflect, remember, and learn. The theme of SMA Awareness Month 2024 is ‘Breakthroughs Begin with You.’ It’s an opportunity for you

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