November 2024

SMA Community Advocacy Wins and Champions Celebrated at Cure SMA Event

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Individuals with spinal muscular atrophy (SMA) and their families recognized congressional champions and celebrated advocacy progress at Cure SMA’s Hope on the Hill event. U.S. Representative Sam Graves (MO-6) Photo: Jay Mallin U.S. Representative Pete Stauber (MN-8) Photo: Jay Mallin U.S. Representative Mark DeSaulnier (CA-10) Photo: Jay Mallin This year’s event, which was held on […]

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Celebrate 40 Years of Impact – Join Us in Making a Difference!

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Thank you for being an essential part of this journey and for believing in our mission. As we mark 40 years of dedicated service to the spinal muscular atrophy (SMA) community, we reflect on our journey and the incredible milestones we’ve achieved together. In 1984, a small group of parents founded Families of Spinal Muscular

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Spinal Muscular Atrophy (SMA) Update in Best Practices: Recommendations for Treatment Considerations

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As part of our ongoing efforts to drive quality health care standardization and improvements for the SMA community, Cure SMA is pleased to announce the next publication in a series of resources designed to support healthcare professionals, and individuals with SMA, and their caregivers.     “Spinal Muscular Atrophy (SMA) Update in Best Practice: Recommendations for Treatment

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Make an Impact with Cure SMA’s Mission, Milestones, Momentum Campaign

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We’re kicking off our Mission, Milestones, Momentum Year-End Campaign with an incredible $50,000 matching gift. In honor of Hunter Rhodes, living with SMA, the Johns Family has generously donated $50,000 and has challenged the SMA community to double their impact by joining them in making a gift to Cure SMA today–no matter how big or

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