As part of our ongoing efforts to drive quality health care standardization and improvements for the SMA community, Cure SMA is pleased to announce the next publication in a series of resources designed to support healthcare professionals, and individuals with SMA, and their caregivers.
“Spinal Muscular Atrophy (SMA) Update in Best Practice: Recommendations for Treatment Considerations”, published in Neurology Clinical Practice, was developed in partnership with SMA key opinion leaders, individuals with SMA, and caregivers.
Cure SMA will promote this publication to healthcare professionals including our 300 treatment and care sites and state newborn screening public health laboratories through email outreach and postings, webinars, CME content development, and medical conference presentations.
A summary report of the published recommendations is also available. This resource provides information to empower newly diagnosed individuals with SMA, their families, and caregivers to actively participate in and advocate for their care and treatment. Healthcare professionals are encouraged to share this resource with patients and families during visits.
Thank you!
Thank you to the community members and clinicians who supported the development of this resource.
Funding for this initiative was provided by the Cure SMA Real World Evidence Collaboration; members include Cure SMA, Novartis, Biogen, Genentech/Roche.