What is Rare Disease Month?
Every February, Rare Disease Month raises awareness for the 300 million people worldwide living with a rare disease. It culminates on Rare Disease Day (February 28)—a day dedicated to advocating for research, treatments, and policies that improve lives. This month is a powerful opportunity to spotlight spinal muscular atrophy (SMA) and ensure our community’s needs are recognized.
Three Ways You Can Support the SMA Community For Rare Disease Month
1. Donate: Fund Life-Changing Research
Your gift fuels the breakthroughs that change lives. SMA research has come further than most rare diseases, but we can’t stop now. Every dollar you give helps fund SMA research, leading to new treatments and eventually a cure.
Click here to make a donation.
2. Share Your SMA Story: Raise Awareness
Your voice has the power to inspire change. By sharing your SMA journey—whether as someone living with SMA, a caregiver, or an advocate—you help others understand the real impact of this disease. True awareness comes from more than just knowledge—it comes from understanding the real lives impacted by SMA. When you share your story, you drive meaningful change. You can share your story on social media and be sure to tag @CureSMA so we can potentially share it on our page as well.
3. Learn: Stay Informed on the Latest SMA Advancements
The SMA community’s investment in research has led to remarkable progress in SMA treatments, and staying informed is one of the best ways to support and advocate for continued breakthroughs. This month, and especially during Rare Disease Week (starting February 23), we’ll be sharing the latest advancements shaping the future of the SMA community.