Advocacy
Global Genes Features Cure SMA in Patient Voice Project
Global Genes recently published, “From Molecules to Medicines: How Patients Can Share Their Voices Through the Drug Development Process.” This toolkit was the product of […]
Read More ›Senate HELP Committee Passes Another 7 Innovation Bills
The Senate Health, Education, Labor and Pensions (HELP) Committee yesterday passed an additional 7 bills out of committee. Along with the 7 bills previously passed […]
Read More ›Senate HELP Committee Passes Innovation Bills
The Senate Health, Education, Labor and Pensions (HELP) Committee has passed 7 bills out of committee as part of its “step-by-step” approach to Innovation and […]
Read More ›Update on 21st Century Cures/Innovation: the Senate’s “Step-by-Step” Approach
Cure SMA has been carefully monitoring the consideration of 21st Century Cures on Capitol Hill. As you know, the House passed legislation in July last […]
Read More ›Cure SMA Testifies Before FDA at PDUFA Meeting
The Prescription Drug User Fee Act (PDUFA), the law that allows the FDA to collect fees from drug manufacturers to fund the new drug approval […]
Read More ›5th Annual Congressional Dinner Brings Together Families, Government and Industry
On December 1, more than 120 people from the SMA community—including government, and industry partners—gathered for the 5th Annual “Hope on the Hill” Congressional Dinner. […]
Read More ›5th Annual Hope on the Hill Congressional Dinner Advances SMA Advocacy
This year’s 5th Annual “Hope on the Hill” Congressional Dinner will be held on Tuesday, December 1, bringing together families, government, and industry for an […]
Read More ›Clinical and Regulatory Webinar and Extended Q&A Now Available
A recording of last week’s Cure SMA Clinical and Regulatory Webinar is now available online. WATCH Our thanks again to our three panelists—Dr. Tim Franson, […]
Read More ›Tell Your Senator to Support Innovations for Healthier Americans
We need your help in contacting your Senators to tell them that legislation promoting innovation and research is extremely important to you and that the […]
Read More ›Cure SMA Publishes Journal Article on the Patient Voice
Cure SMA, along with collaborators from Biogen and the SMA Foundation, have published a paper in the journal BMC Neurology. Over the past year, we’ve […]
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