Advocacy

5th Annual Hope on the Hill Congressional Dinner Advances SMA Advocacy

November 20, 2015
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This year’s 5th Annual “Hope on the Hill” Congressional Dinner will be held on Tuesday, December 1, bringing together families, government, and industry for an […]

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Clinical and Regulatory Webinar and Extended Q&A Now Available

November 18, 2015
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A recording of last week’s Cure SMA Clinical and Regulatory Webinar is now available online. WATCH Our thanks again to our three panelists—Dr. Tim Franson, […]

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Tell Your Senator to Support Innovations for Healthier Americans

November 4, 2015
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We need your help in contacting your Senators to tell them that legislation promoting innovation and research is extremely important to you and that the […]

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Cure SMA Publishes Journal Article on the Patient Voice

October 27, 2015
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Cure SMA, along with collaborators from Biogen and the SMA Foundation, have published a paper in the journal BMC Neurology. Over the past year, we’ve […]

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House of Representatives Passes Ensuring Access to Clinical Trials Act

September 30, 2015
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The House of Representatives has passed the Ensuring Access to Clinical Trials Act of 2015 (EACT). This bill already passed the Senate in July, and […]

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FDA Engagement Update: The Voices of SMA

September 23, 2015
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Thanks to our vibrant community, August was one of our largest and best awareness months ever, with unprecedented levels of public awareness and outreach for […]

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House of Representatives Passes 21st Century Cures

July 10, 2015
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The House of Representatives has passed 21st Century Cures. Cure SMA is proud to support this legislation. Thank you for your calls and tweets to […]

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Cure SMA Announces Partnership with The District Policy Group

June 2, 2015
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Cure SMA has announced a new partnership with the District Policy Group, a boutique lobbying, public policy, and advocacy practice, to advocate for several key […]

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Cure SMA Receives NIH Grant

May 27, 2015
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For the seventh consecutive year, Cure SMA has received a grant from the National Institutes of Health (NIH) for the SMA Researcher Meeting. This year’s […]

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21st Century Cures Unanimously Passes Committee

May 22, 2015
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Yesterday, the 21st Century Cures bill was unanimously passed by the House Energy and Commerce Committee. 21st Century Cures would overhaul how the Food and […]

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