Author name: Morgan Tuttle

Cure SMA Funds 28 Research Projects in 2015, as Drug Pipeline Grows to 18 Programs

Leave a Comment / Clinical Trials, Front Page News, Our Impact, Research /

Our approach to research is focused on continually expanding the pipeline of potential drugs and therapies for SMA, cultivating new approaches and advancing promising ideas. Every year, the pipeline gets broader and deeper. We’ve seen enormous growth over the past decade, and we expect that growth to continue in the coming years as more projects […]

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Cure SMA Reaches Thousands of Families in 2015

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Each year, Cure SMA provides thousands of families with vital support and resources to help them live active, engaged and hopeful lives. Our programs provide tangible support for families affected by SMA, easing the difficulties of an SMA diagnosis, and showing each family that they are not alone and that there is hope. Our family

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5th Annual Congressional Dinner Brings Together Families, Government and Industry

Leave a Comment / Advocacy, Community Awareness, Events & Fundraising, Front Page News /

On December 1, more than 120 people from the SMA community—including government, and industry partners—gathered for the 5th Annual “Hope on the Hill” Congressional Dinner. Several Members of Congress attended the dinner, including Speaker of the House Paul Ryan, Congressman Sean Duffy, Congressman Richard Hudson, Congressman Bill Huizenga, Congressman Erik Paulsen, Congressman David Schweikert, and

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Cure SMA and Cytokinetics Announce Partnership to Advance Education and Awareness of Spinal Muscular Atrophy

Leave a Comment / Community Awareness, Front Page News /

ELK GROVE VILLAGE, Ill. and SOUTH SAN FRANCISCO, Calif., Dec 8, 2015 – Cure SMA and Cytokinetics Inc. (Nasdaq: CYTK), a leading muscle biology company, today announced an expanded partnership to increase education, awareness and fundraising for spinal muscular atrophy (SMA). As a National Gold Partner, Cytokinetics will lend support to key national and local

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Cure SMA Scientific Advisory Board Meets in Chicago

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Members of Cure SMA’s Scientific Advisory Board (SAB) have gathered in Chicago, meeting to advance Cure SMA’s research goals. Our SAB is made up of highly respected SMA researchers, including experts in child neuromuscular disorders, SMA biology, SMN splicing, motor neurons, mouse and other animal models, and more. The SAB focuses on identifying the most

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5th Annual South Florida Gala of Hope Raises Record Total of $224,000

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The 5th Annual South Florida Chapter Gala of Hope was a fantastic evening to raise funds and awareness of SMA. This year’s event has already raised over $224,000, and money is still being tabulated! In its five-year history, the event has raised an incredible total of over $700,000 for SMA research and family support. The

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5th Annual Hope on the Hill Congressional Dinner Advances SMA Advocacy

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This year’s 5th Annual “Hope on the Hill” Congressional Dinner will be held on Tuesday, December 1, bringing together families, government, and industry for an important evening of collaboration. As more SMA drugs reach late stage clinical trials, we remain focused on educating, involving, and engaging all three groups in our community: the patient and

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Clinical and Regulatory Webinar and Extended Q&A Now Available

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A recording of last week’s Cure SMA Clinical and Regulatory Webinar is now available online. WATCH Our thanks again to our three panelists—Dr. Tim Franson, Dr. Tim Miller, and Dr. Tom Murray—for their expertise and for their generosity with their time. Our thanks also to everyone from our community who joined in. We received a

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Fall 2015 Issue of Compass Highlights SMA Researcher Meeting

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The latest issue of Compass, our research publication, is now available online. This fall 2015 issue covers our 2015 SMA Researcher Meeting. The researcher meeting is held each year as part of our Annual SMA Conference. It is the largest research meeting in the world focused on SMA, where about 300 basic researchers, drug developers,

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