Cure SMA is pleased to share that we have granted over 900 scholarships to date for the Annual SMA Conference taking place June 28-July 1, 2019 at Disneyland Resort in Anaheim, CA. Each year, the organization offers scholarships to newly diagnosed families, adults (18 and over) with SMA, and general Conference scholarships to help SMA […]
Cure SMA Grants More Than 900 Scholarships for Annual SMA Conference Read More »
In 2018, Cure SMA launched the SMA Care Center Network, a collection of specialized clinics across the nation to help ensure all those living with spinal muscular atrophy (SMA) are able to receive high-quality, multidisciplinary care and access to new therapies. As of April 2019 there are 10 contracted partner sites, with a total of
Cure SMA Care Center Network Expands to 10 Sites Read More »
Cure SMA has released the schedule for the 2019 Annual SMA Conference, which will be held at the Disneyland Hotel in Anaheim, California from Friday, June 28 – Monday, July 1. We look forward to reuniting as a community at this year’s conference in order to lend each other support and strength, and to learn
2019 Annual SMA Conference Schedule is Released Read More »
The 2019 Annual SMA Conference is rapidly approaching and conference registration is growing just as quickly! This year’s conference will be one of the biggest ever and will include the Family Conference, the Researcher Meeting, and the Clinical Care Meeting. Hotel rooms are rapidly being reserved, and are already over 80% booked – Be sure
2019 Annual SMA Conference Registration Continues to Grow! Read More »
Cure SMA and Cure SMA Canada have awarded a $150,000 research grant to Jocelyn Cote, PhD, at the University of Ottawa for his project, “Investigating the contributions of CARM1 and HuR misregulation to SMA skeletal muscle and NMJ defects.” While an essential role for SMN in spinal cord motor neurons remains central to the pathophysiology
Cure SMA Awards $150,000 Grant to Jocelyn Cote, PhD, University of Ottawa Read More »
Cure SMA is thrilled to continue to provide the Summit of Strength Program to local communities throughout the United States. The 2018 Summit of Strength Program was a great success, and the 2019 Summit of Strength Program has officially begun! Spinal muscular atrophy (SMA) is a disease that robs people of strength by affecting the
What is the Summit of Strength Program? Read More »
We’re doing everything we can to improve quality of life for children, adults and families affected by SMA. We give individuals and families the information and resources they need to live active, engaged, and hopeful lives today. We’re dedicating the month of April to Local Support. The Summit of Strength program is the centerpiece of
We’re Celebrating Local Support Read More »
Cure SMA and FAME (Families of SMA, Argentina) have awarded a $200,000 research grant to Alberto Kornblihtt, PhD, at the Universidad de Buenos Aires, Argentina, for his project, “Epigenetics in SMN2 E7 Alternative Splicing II.” Epigenetics refers to changes that affect how much protein is produced from each gene, without altering the DNA sequence. Dr.
Cure SMA Awards $200,000 Grant to Alberto Kornblihtt, PhD, Universidad de Buenos Aires Read More »
Cure SMA has awarded a $200,000 research grant to Charlotte Sumner, MD, at Johns Hopkins University, for her project, “Neurofilaments as markers of neurodegeneration in SMA.” Dr. Sumner and her team are looking at the neuronal-specific cytoskeletal protein neurofilaments (NFs) released during axonal degeneration. These NFs can be measured in blood and/or cerebral spinal fluid
Cure SMA Awards $200,000 Grant to Charlotte Sumner, MD, Johns Hopkins University Read More »
The Winter 2019 issue of Compass is now available online. This issue covers Cure SMA’s latest drug discovery grant funding and features an updated SMA drug pipeline. Drug discovery, also called translational research, is the second step in the drug development process. Drug discovery takes the seed ideas discovered in basic research, the first stage,
The Winter 2019 issue of Compass in Now Available Online Read More »
