Originally published on May 28, 2014. Cure SMA has been awarded a grant from The National Institute of Neurological Disorders and Disease (NINDS) and the Office of Rare Disease Research at The National Center of Advancing Translational Sciences (NCATS) of the National Institutes for Health (NIH) to support the 2014 SMA Research Group Meeting. We […]
Based in Buffalo, NY, the Spinal Muscular Atrophy Research Team (SMART) is a grass roots organization started in 2009 to raise awareness and funds for research aimed at finding a cure for SMA & related diseases. SMART is an all-volunteer organization of friends and family with the mission of providing hope for a better life,
SMART Gives $50,000 to Cure SMA to Support Research Read More »
Originally published on July 9, 2014. Cure SMA is pleased to announce that we are accepting grant applications for funding of research projects, under a competitive review by our Scientific Advisory Board. Up to to $700,000 will be committed to new research projects in this round of funding, with other rounds of funding to be
Originally published on July 16, 2014. Cure Spinal Muscular Atrophy (SMA) is pleased to announce that we are accepting applications for 2014 funding of clinical care research projects, under a competitive review by our Medical Advisory Council (MAC). The goal of this program is to improve care and living with SMA. Program Overview: The deadline
Back by popular demand, Cure SMA and Isis Pharmaceuticals are once again teaming up for a holiday card contest! This contest is open to children with spinal muscular atrophy, their siblings, and to children of parents with SMA. Isis will select three entries to use in their annual holiday card. These winning entries will receive
Cure SMA and Isis Announce 2015 Holiday Card Contest Read More »
Originally published on August 6, 2014. Christian Lorson PhD, investigator in the Bond Life Sciences Center and Professor of Veterinary Pathobiology at the University of Missouri, has been working on the development of a novel compound found to be efficacious in animal models of disease. The compound is an antisense oligonucleotide (ASO). It increases life
Originally published on August 20, 2014. Recently, we announced that Dr. Lyndsay Murray at The University of Edinburgh will receive a a Cure SMA basic research grant of $80,000 over two years, to explore the reasons causing motor neuron cell death in SMA. Motor neurons are nerve cells in the brain stem and spinal cord
Cure SMA Announces Basic Research Funding for Dr. Lyndsay Murray Read More »
Registration is now open for the 2016 Annual SMA Conference, which will be held in Anaheim, CA, at The Disneyland Hotel from Thursday, June 16th through Sunday, June 19th, 2016. Every year, Cure SMA sponsors a conference to bring together the leading SMA researchers, clinicians, and families living with SMA. Cure SMA has been hosting
Family Registration for the 2016 Annual SMA Conference is Now Open Read More »
Fourteen-year-old Bailey Walter was recently selected from among 20,000 entrants to receive the August Nickelodeon Halo Effect Award. This award honors teens from around the country for their charitable work. Bailey received the award for the “Let Them Dance” campaign, which she started in honor of her best friend, Kale Shiesley, who has SMA. The
Western New York Teen Wins Nickelodeon Halo Award Read More »
Originally published on October 21, 2014. Scott Geller received inaugural Community Partnership Award at The Annual SMA Conference. We are proud to announce Scott Geller, who chaired the Chesapeake Chapter Golf Outing for fourteen years, as the first ever recipient of the Annual Community Partnership Award. The award was presented at The Annual SMA Conference
Cure SMA Honors Scott Geller with 1st Annual Community Partnership Award Read More »
