Author name: Morgan Tuttle

Medical Advisory Council Gathers for Fall 2014 Meetings

Members of the Cure SMA Medical Advisory Council (MAC) are holding two days of meetings, November 7-8, at the Cure SMA national offices. The MAC is one of the most highly respected bodies of SMA medical and clinical experts in the US, setting the agenda for proactive, creative, and collaborative leadership on issues that improve […]

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BAYADA Pediatrics Renews National Sponsorship with Cure SMA

Cure SMA and BAYADA Pediatrics is proud to jointly announce that BAYADA has renewed its partnership with Cure SMA, as a national sponsor of the Walk-N-Roll program. Throughout the past year, in the true spirit of providing community service where they live and work, BAYADA Pediatrics offices came together to raise funds and awareness for

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Promising Results Published on Cure SMA-Funded Gene Therapy Project

A manuscript from the laboratory of Dr. Brian Kaspar of Nationwide Children’s Hospital was recently published in the journal Molecular Therapy. The paper, “Improving single injection CSF delivery of AAV9-mediated gene therapy for SMA—a dose response study in mice and nonhuman primates” is the first publication resulting from a groundbreaking collaboration between Cure SMA, the

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Read the Fall 2014 Issue of Compass

The latest issue of Compass, our research publication, is now available online. This Fall 2014 issue includes news from our 2014 SMA researcher meeting, and news from the 2014 CME conference. Also in this issue, Cure SMA Scientific Advisory Board member Arthur Burghes, PhD, provides an update from our 2014 conference special session, “Moving Beyond

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2014 SMA Researcher Meeting Summary: Clinical Trials

We will be posting a series of summaries from our 2014 researcher meeting, highlighting some of the most interesting new developments and discoveries presented there. This is the last of four total updates, and the second of two in drug discovery and clinical trials. This session was moderated by Douglas Kerr, MD, PhD, Biogen Idec.

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2014 SMA Researcher Meeting Summary: Therapy Development

We will be posting a series of summaries from our 2014 researcher meeting, highlighting some of the most interesting new developments and discoveries presented there. This is the third of four total updates, and the first of two in drug discovery and clinical trials. This summary was written by Cure SMA Scientific Advisory Board member

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Cure SMA Honors Scott Geller with 1st Annual Community Partnership Award

We are proud to announce Scott Geller, who chaired the Chesapeake Chapter Golf Outing for fourteen years, as the first ever recipient of the Annual Community Partnership Award. The award was presented at The Annual SMA Conference this June in Washington D.C. Scott first attended the Chesapeake Chapter Golf Outing as a guest. Scott was

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2014 SMA Researcher Meeting Summary: SMA Pathology

We will be posting a series of summaries from our 2014 researcher meeting, highlighting some of the most interesting new developments and discoveries presented there. This is the second of four total updates, and the second of two in basic research. This summary was written by Cure SMA Scientific Advisory Board (SAB) member Samuel Pfaff,

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2014 SMA Researcher Meeting Summary: The SMN Protein

We will be posting a series of summaries from our 2014 researcher meeting, highlighting some of the most interesting new developments and discoveries presented there. This is the first of four total updates, and the first of two in basic research. This summary was written by Cure SMA Scientific Advisory Board member Adrian Krainer PhD,

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