Whether you have SMA, have a loved one with SMA, are a researcher, care provider, industry partner, or are new to the SMA community, SMA Awareness Month is a time to come together to celebrate, honor, reflect, remember, and learn. The theme of SMA Awareness Month 2024 is ‘Breakthroughs Begin with You.’ It’s an opportunity for you […]
August is Spinal Muscular Atrophy (SMA) Awareness Month! Read More »
Cure SMA is pleased to announce the publication of “Newborn Screening and Birth Prevalence for Spinal Muscular Atrophy in the US” in JAMA Pediatrics on July 15, 2024. This paper reports the largest data collection of infants with SMA identified by newborn screening in the U.S. The objectives were: 1) to update the estimated birth
Cure SMA Publishes Update on the Birth Prevalence of Spinal Muscular Atrophy (SMA) Read More »
Each year, Cure SMA collaborates with our Scientific Advisory Board to plan a Special Session to be held during the Annual Research & Clinical Care Meeting. This Special Session is designed to focus on a topic that is currently of great interest to both researchers and clinicians. This year’s Special Session, “The Importance of Understanding
Special Session Highlights from 2024 Annual SMA Research & Clinical Care Meeting Read More »
This week, a key congressional committee recognized the unmet, everyday living needs of individuals with spinal muscular atrophy (SMA) by urging the National Institutes of Health (NIH) to support new SMA research. The U.S. House Appropriations Committee approved a funding bill on July 10 that provides resources and direction to the NIH and other federal
Congressional Action Recognizes Unmet Needs of SMA Community Read More »
On July 12, 2024, Biogen shared highlights and updates from the 2024 Annual SMA Conference, including their collaboration with Delta Flight Products and their sponsorship of the Self-Expression Art Exhibit focused on travel. Read the full community statement here. “Cure SMA hosted yet another wonderful Annual SMA Conference where community members traveled from across the
SMA Highlights: Updates from Biogen Read More »
During the first week of June, SMA researchers and clinicians from around the world met in Austin, Texas, for the 28th Annual SMA Research & Clinical Care Meeting. Their common goals were to accelerate the pace of research into SMA treatments and achieve excellence in SMA clinical care. The annual meeting provides an opportunity for
The Spring 2024 issue of Compass is now available online. This year, we are proud to announce six new research grants, totaling $750,000, to further our mission to drive breakthroughs in the treatment of spinal muscular atrophy (SMA). Basic research is the first step in developing new treatments and ultimately, a cure for spinal
Spring 2024 Issue of Compass Now Available Read More »
Thank you to everyone who attended the 2024 Annual SMA Conference at the JW Marriott in Austin, Texas! It was an impactful weekend of opportunities to connect, learn, and have fun. We are happy to announce that there were over 2,260 attendees in total – our second-largest conference to date! It was an honor to
Thank You for an Amazing 2024 Annual SMA Conference! Read More »
During the first week of June, SMA researchers and clinicians from around the world met in Austin, Texas, for the 28th Annual SMA Research & Clinical Care Meeting. Their common goals were to accelerate the pace of research into SMA treatments and achieve excellence in SMA clinical care. The annual meeting provides an opportunity for
Cure SMA is pleased to announce the launch of the third State of SMA report. The annual data report highlights data from Cure SMA’s three databases: a patient-reported database with data from over 10,000 affected individuals worldwide that also incorporates longitudinal data from our annual Community Update Survey; the SMA Clinical Data Registry (CDR) that
Check Out Cure SMA’s 2023 State of SMA Report Read More »
