Community Awareness
Cure SMA Welcomes Aboard New Board and Committee Members
Recently, Cure SMA confirmed three new board members and one new committee member. These new members will provide additional leadership in the areas of advocacy, […]
Read More ›We’re Partnering With The Mighty!
We’re thrilled to announce a new partnership that will bring Cure SMA’s resources in front of The Mighty‘s wide-reaching readership. We will now have a […]
Read More ›Cure SMA Plans a Series of Educational Modules for the SMA Community
With the recent news that Biogen and Ionis will submit nusinersen for FDA approval—along with other recent developments, including the breakthrough designation for AveXis’s gene […]
Read More ›Cure SMA Releases Full Schedule for the 2016 Annual SMA Conference
Cure SMA has released the full schedule for the 2016 Annual SMA Conference, which will be held in Anaheim, CA at Disneyland, June 16-19. The […]
Read More ›Cure SMA Welcomes New Board and Committee Members
Recently, Cure SMA confirmed three new board members and several new committee members. These new members will provide additional leadership in the areas of advocacy, […]
Read More ›Cure SMA and the SMA Community Featured by Astellas Pharmaceuticals
Cure SMA is featured by Astellas Pharmaceuticals as part of their new Changing Tomorrow Together website. Cure SMA Research Director Jill Jarecki contributed a spotlight […]
Read More ›Adult Scholarships Offered for 2016 Annual SMA Conference
Cure SMA is pleased to announced that, thanks to a generous grant from The Dhont Family Foundation, we are offering conference scholarships to all adults […]
Read More ›Global Genes Features Cure SMA in Patient Voice Project
Global Genes recently published, “From Molecules to Medicines: How Patients Can Share Their Voices Through the Drug Development Process.” This toolkit was the product of […]
Read More ›Winter 2015 Issue of Directions Now Online
The Winter 2015 issue of Directions is now available! Please visit our Support & Care Publications page to download this issue or past issues of […]
Read More ›Patients and Caregivers of Patients with Type II and III SMA Needed for Educational Research Survey
I am a medical education researcher fielding a survey to individuals or caregivers of individuals with Type II or III spinal muscular atrophy (SMA) to […]
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