Community Awareness

Cure SMA Receives Generous Donation from Fighting for Kaiden Foundation

January 13, 2016
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Cure SMA would like to thank the Fighting for Kaiden Foundation for their generous donations to Cure SMA programs. That generosity is providing both support […]

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5th Annual Congressional Dinner Brings Together Families, Government and Industry

December 10, 2015
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On December 1, more than 120 people from the SMA community—including government, and industry partners—gathered for the 5th Annual “Hope on the Hill” Congressional Dinner. […]

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Cure SMA and Cytokinetics Announce Partnership to Advance Education and Awareness of Spinal Muscular Atrophy

December 8, 2015
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ELK GROVE VILLAGE, Ill. and SOUTH SAN FRANCISCO, Calif., Dec 8, 2015 – Cure SMA and Cytokinetics Inc. (Nasdaq: CYTK), a leading muscle biology company, […]

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5th Annual Hope on the Hill Congressional Dinner Advances SMA Advocacy

November 20, 2015
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This year’s 5th Annual “Hope on the Hill” Congressional Dinner will be held on Tuesday, December 1, bringing together families, government, and industry for an […]

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Cure SMA Welcomes the North Jersey Chapter

November 4, 2015
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Cure SMA is pleased to announce the creation of a new chapter in northern New Jersey, serving families and supporters with zip codes starting with […]

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Cure SMA and Other Venture Philanthropy Leaders Share Insight at Partnering for Cures Panel

November 3, 2015
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Cure SMA President Kenneth Hobby was a featured panelist at Partnering for Cures, a conference convened by the Milken Institute’s FasterCures initiative. At the event, […]

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Cure SMA to Host Clinical and Regulatory Webinar

October 12, 2015
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On Monday, November 9, Cure SMA will be hosting a one-hour webinar on clinical trials and regulatory topics. The webinar will be held at 11:00am […]

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Thank You to Jessica Moyer and Family

September 24, 2015
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A note from Rich Rubenstein, Kenneth Hobby, and the entire Cure SMA team: Cure SMA has had the honor to have Jessica Moyer and her […]

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FDA Engagement Update: The Voices of SMA

September 23, 2015
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Thanks to our vibrant community, August was one of our largest and best awareness months ever, with unprecedented levels of public awareness and outreach for […]

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Cure SMA and Isis Announce 2015 Holiday Card Contest

September 10, 2015
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Back by popular demand, Cure SMA and Isis Pharmaceuticals are once again teaming up for a holiday card contest! This contest is open to children […]

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