Community Awareness
SMA Awareness Month 2019 Has Begun!
SMA Awareness Month occurs in August! The SMA community officially recognizes August as Spinal Muscular Atrophy Awareness Month and Cure SMA has been coordinating activities […]
Read More ›Community Spotlight: Laura Watson
Laura Watson is team captain of Laura’s Dream Team and fundraising committee co-chair of the North New Jersey Cure SMA Chapter. On Saturday, June 22, […]
Read More ›Team Cure SMA to Participate in Vermont City Marathon
On Sunday, May 26th, Regina Philipps will participate in the Vermont City Marathon and has already raised over $13,000 for Team Cure SMA while training. […]
Read More ›Community Spotlight: Kyle and Laura Derkowski
Kyle and Laura Derkowski are co-chairs of the Cure SMA Virginia Chapter. The pair met during their first year in college through a mutual friend […]
Read More ›Community Update Survey Q&A
Cure SMA recently launched the third annual Community Update Survey to address important issues in SMA treatment and care. The Community Survey covers several areas […]
Read More ›What is the Summit of Strength Program?
Cure SMA is thrilled to continue to provide the Summit of Strength Program to local communities throughout the United States. The 2018 Summit of Strength […]
Read More ›Team Cure SMA New York City Half Marathon Runners Raise $15,000 for Cure SMA
Nine Team Cure SMA runners completed the 2019 United Airlines New York City Half Marathon on Sunday, March 17. Together, the runners successfully raised over […]
Read More ›Cure SMA Launches Third Annual Community Survey to Address Important Issues in SMA Treatment
For the past several years, we’ve been working to collect data and information on our community’s experiences, goals, hopes, and challenges. We know that the […]
Read More ›New Dates and Locations Announced for 2019 Summits of Strength
Cure SMA is pleased to announce that we will be continuing the Summit of Strength Program in 2019, adding 20 new events from March through […]
Read More ›Community Spotlight: Kristen Smith
The SMA community has been lobbying state and federal government for years. Kristen Smith shares how she became involved with advocacy. Kristen Smith describes herself […]
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