Community Awareness
Cure SMA Receives Generous Donation from the Cash Scanlon-Philips Foundation
Cure SMA would like to thank the Cash Scanlon-Philips Foundation for their generous donation to fund a years’ worth of type II newly diagnosed care packages. […]
Read More ›Community Spotlight: The Anton Jensen Family
Quinn Anton Jensen was diagnosed with spinal muscular atrophy (SMA) type II on March 2007 in Iowa City. Quinn’s mom, Nancy, recalls the genetic testing […]
Read More ›Community Spotlight: The Nelson Family
Mary was 4 months old when her parents, Ryan and Kate Nelson, suspected something wasn’t quite right with their daughter; she wasn’t bearing weight on […]
Read More ›Community Spotlight: The Zmaczynski Family
At 7 months old, Sarah Zmaczynski’s parents, Jill and John, noticed their daughter couldn’t bear weight on her legs. Sarah’s pediatrician responded with the “kids […]
Read More ›Community Spotlight: Doug McCullough
In 2014, Doug McCullough gave a TEDx talk at a Johnson & Johnson event in New Jersey that focused on disability inclusion in the workplace. […]
Read More ›Cure SMA Concert for a Cure Reaches $2 Million Milestone
The 2018 Cure SMA Concert for a Cure raised $210,000 on April 21, 2018. After combining many years of fundraising and hard work, the 18th […]
Read More ›Community Spotlight: The Colone Family
In this Community Spotlight, Victoria Colone delves into the complexities of early diagnosis and treatment as a mom navigating the world of healthcare for her […]
Read More ›Heather Tomko Crowned as Ms. Wheelchair USA 2018
The guest blog post below was written by Heather Tomko, sharing her experience in the Ms. Wheelchair USA 2018 pageant. She is the reigning Ms. […]
Read More ›Community Spotlight: Brynne Willis
At 10 years old, Brynne Willis knew something was wrong; it was time for the Presidential Fitness Test required by public schools and she kept […]
Read More ›August is SMA Awareness Month!
The SMA community officially recognizes August as Spinal Muscular Atrophy Awareness Month, an effort that Cure SMA has been coordinating since 1996. August is a […]
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