Community Awareness
Thank You For a Wonderful 2018 Annual SMA Conference!
Thank you to everyone who attended the 2018 Annual SMA Conference at the Hilton Anatole Hotel in Dallas, Texas! It was an impactful weekend of […]
Read More ›Traveling with SMA
As the summer season nears, many families will make plans to travel across the country to exciting destinations or to spend time with those they […]
Read More ›SMA Community Leaders to Gather in Washington DC to Network, Learn and Advocate
On Thursday, April 26, more than 70 chapter leaders, event organizers and board/committee members, representing 24 states and DC, will gather in Washington DC for […]
Read More ›SMA Newborn Screening Guidelines Published in Journal of Neuromuscular Diseases
The recent decision of the federal Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) to recommend SMA for addition to the RUSP, as […]
Read More ›Community Spotlight: Nathan Yates
Growing up in Virginia, Nathan Yates always had a vision for his future. From an early age, he became interested in finance, and as a […]
Read More ›The Discovery of SMA
In 2016, the spinal muscular atrophy community celebrated the approval of the first-ever treatment that targets the underlying genetic cause of SMA. This was a […]
Read More ›Cure SMA Launches Second Annual Community Survey to Address Important Issues in SMA Treatment
Dear Members of the SMA Community, For the past several years, we’ve been working to collect data and information on our community’s experiences, goals, hopes, […]
Read More ›Indiana is the Fourth State to Adopt Permanent SMA Screening
Last night, Governor Eric Holcomb of Indiana signed HB 1017, adding spinal muscular atrophy (SMA) and severe combined immunodeficiency (SCID) to the state’s newborn screening […]
Read More ›Awareness is Best Raised When We Work Together
When a loved one is affected by spinal muscular atrophy, whether recently diagnosed or living with SMA for a while, you want to make a […]
Read More ›SMA Newborn Screening Moves Forward in Indiana, Ohio and Georgia
The spinal muscular atrophy community is celebrating significant progress toward adding SMA to newborn screening panels in several states. Indiana Poised to Become the Fourth […]
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