Community Awareness

Community Spotlight: Brynne Willis

August 1, 2018
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At 10 years old, Brynne Willis knew something was wrong; it was time for the Presidential Fitness Test required by public schools and she kept […]

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August is SMA Awareness Month!

July 31, 2018
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The SMA community officially recognizes August as Spinal Muscular Atrophy Awareness Month, an effort that Cure SMA has been coordinating since 1996. August is a […]

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Thank You For a Wonderful 2018 Annual SMA Conference!

June 25, 2018
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Thank you to everyone who attended the 2018 Annual SMA Conference at the Hilton Anatole Hotel in Dallas, Texas! It was an impactful weekend of […]

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Traveling with SMA

June 7, 2018
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As the summer season nears, many families will make plans to travel across the country to exciting destinations or to spend time with those they […]

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SMA Community Leaders to Gather in Washington DC to Network, Learn and Advocate

April 24, 2018
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On Thursday, April 26, more than 70 chapter leaders, event organizers and board/committee members, representing 24 states and DC, will gather in Washington DC for […]

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SMA Newborn Screening Guidelines Published in Journal of Neuromuscular Diseases

April 6, 2018
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The recent decision of the federal Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) to recommend SMA for addition to the RUSP, as […]

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Community Spotlight: Nathan Yates

April 4, 2018
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Growing up in Virginia, Nathan Yates always had a vision for his future. From an early age, he became interested in finance, and as a […]

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The Discovery of SMA

March 20, 2018
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In 2016, the spinal muscular atrophy community celebrated the approval of the first-ever treatment that targets the underlying genetic cause of SMA. This was a […]

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Cure SMA Launches Second Annual Community Survey to Address Important Issues in SMA Treatment

March 12, 2018
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Dear Members of the SMA Community, For the past several years, we’ve been working to collect data and information on our community’s experiences, goals, hopes, […]

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Indiana is the Fourth State to Adopt Permanent SMA Screening

March 9, 2018
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Last night, Governor Eric Holcomb of Indiana signed HB 1017, adding spinal muscular atrophy (SMA) and severe combined immunodeficiency (SCID) to the state’s newborn screening […]

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