Community Awareness
#ShowYourRare and Raise SMA Awareness on World Rare Disease Day
Rare Disease Day is today, February 28! And we’re calling on our entire spinal muscular atrophy community to get involved. Rare Disease Day is important […]
Read More ›Last Week’s Webinar on Treatment Access and Clinical Trials Now Available
A recording of last week’s webinar updating the community on treatment access and clinical trials is now available online. A PDF of the webinar presentation […]
Read More ›Cure SMA Receives Generous Gift from the Weisman Family Foundations
The Weisman Family Foundations recently awarded $65,800 to Cure SMA, in order to further new scientific research, and to help provide access to treatments, clinical […]
Read More ›Cure SMA Receives Generous Gift
Cure SMA is extremely pleased to announce a generous $620,000 gift has been made to the organization. The donation was made anonymously in honor of […]
Read More ›Cure SMA Announces Local Educational Symposiums in 16 US Locations
Cure SMA is pleased to announce a slate of one-day local symposiums, beginning late spring and continuing into fall 2018. The symposiums will be held […]
Read More ›Cure SMA to Host Webinar on Treatment Access and Clinical Trials on February 15
On Thursday, February 15, at 12:00pm CST (10:00am PST/11:00am MST/1:00pm EST), Cure SMA will hold a webinar updating the community on treatment access and clinical […]
Read More ›Miller McNeil Woodruff Foundation Awards Cure SMA Generous Gift
The Miller McNeil Woodruff Foundation recently awarded $87,000 to Cure SMA, in order to further research that will lead to treatments for all ages, stages […]
Read More ›Fall 2017 Directions Now Available for Download
The Fall 2017 issue of Directions is now available. Please visit our Support & Care Publications page to download this issue or past issues of […]
Read More ›Cure SMA Advocates Continue to Advance Newborn Screening Efforts
SMA advocates across the country are working tirelessly with Cure SMA to educate state decision makers on newborn screening. In Maryland and Minnesota, the states’ […]
Read More ›2017 World Muscle Society Congress Recap
From October 3rd through October 7th, Cure SMA attended the 22nd International Annual Congress of the World Muscle Society (WMS) in Saint Malo, France. WMS […]
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