Community Spotlight

Community Spotlight: I Am…Kelsey Roberts

February 5, 2021
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February 28 is Rare Disease Day. Throughout the month—in recognition of our Redefining Rare initiative — we will be posting stories about SMA community members, […]

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Community Spotlight: Brian Chiorello

December 21, 2020
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Brian Chiorello is a Principal Service Delivery Manager at a financial services company near where he lives in Orlando, FL. He resides there with his […]

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Community Spotlight: The Hoskin Family

December 16, 2020
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High school sweethearts, Steven and Amy Hoskin, and their 19-month-old son, Grayson, reside outside Sacramento, CA. Steven describes them as a goofy bunch, always playing […]

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Community Spotlight: Nikki McIntosh

November 25, 2020
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Nikki McIntosh is known as the founder of Rare Mamas, an online resource that supports and empowers mothers who have children with rare diseases. She […]

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Community Spotlight: Sarah Boggess, Research Coordinator, Ornamental Plant Pathology

October 29, 2020
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October has been National Disability Employment Awareness Month, with an official theme of Increasing Access and Opportunity. Throughout the month, we have been posting stories about adults […]

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Community Spotlight: Perspectives from Spencer Cook, Registered Accessibility Specialist

October 26, 2020
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October is National Disability Employment Awareness Month, with an official theme of Increasing Access and Opportunity. Throughout the month, we have been posting stories about adults with […]

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