On Tuesday, September 19, at 12:00pm CST (10:00am PST/11:00am MST/1:00pm EST), Cure SMA will hold a webinar updating the community on the status of Spinraza access. Among the topics covered will be:
- The current status of dosing in states across the US
- Administration sites, including site list information
- Commercial and government insurance policies
- Community resources and support programs
We look forward to hosting an open, candid, and informal discussion of where our community stands on issues surrounding access to this first-ever approved therapy, and what our next steps will be.
Additionally, we encourage you to pre-submit your questions when you register, so that we can plan to answer as many of them as possible. However, you will also have the opportunity submit questions during the webinar itself, as part of an expanded Q&A segment.
Spinraza Administration Site List
In April, Cure SMA launched a list of Spinraza administration sites. This list currently includes over 77 sites in 30 states (including Washington DC), and the list is continually updated as new sites and added. If your local site is not listed here, please email us, or ask the site coordinator to email us, at [email protected]. Site managers must give their permission to have the site listed here.
More information on the site list and the need for additional sites will be covered in this upcoming webinar. We hope you will be able to join us. A recording will also be posted within a week after the webinar.