In February 1994, Barbara and Gene Trainor lost their five-month-old daughter Erin to SMA type I. Throughout the past 20 years, the Trainor family, friends, and colleagues have raised funds for Cure SMA through annual events such as the Chesapeake Crab Feast and the Chesapeake Charity Golf Classic. In addition, they have provided comfort to numerous families by forming the Chesapeake Chapter in Baltimore, Maryland.
This led them to establish the Erin Trainor Memorial Fund, to honor their daughter’s memory by bringing newly diagnosed families together during the Annual SMA Conference and strengthening the SMA community. The Trainors have set an ambitious goal: to raise $1 million through the Erin Trainor Memorial Fund.
Thanks to the dedication of the Trainors, and the generosity of our donors, they recently surpassed the 2/3rd mark on the way to their goal, with over $667,000 raised.
The Erin Trainor Memorial Fund exists to provide scholarships for newly diagnosed SMA families to attend The Annual SMA Conference. Not only will the ETMF allow families the opportunity to participate in this three-day event, but it will also provide each with the opportunity to gather critical care and daily living information from experienced health care professionals as well as other families living with a similar diagnosis.
“We truly see Cure SMA as a gift of hope. This gift has blossomed over the years through supporters like you,” say Gene and Barb Trainor.