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Cure SMA-Funded Researchers at Ohio State University Publish Paper on Effect of Nusinersen in Adults with SMA

May 10, 2021
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Dr. Bakri Elsheikh and colleagues at The Ohio State University have published a paper in the Journal, Frontiers in Neurology, titled “Safety, Tolerability, and Effect of Nusinersen […]

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Community Statement: Quarterly Update from Novartis Gene Therapies

May 6, 2021
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Dear Members of the SMA Community, Novartis Gene Therapies is committed to working with our partners in the SMA community to make a difference in […]

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Community Spotlight: Elizabeth Lockwood 

April 29, 2021
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In honor of National Volunteer Month in April, Cure SMA has shared stories and quotes from volunteers who support our programs and further grow our […]

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Cure SMA-Funded Researchers at Columbia University Publish Paper on Fatigue in SMA

April 26, 2021
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Dr. Jacqueline Montes and colleagues at Columbia University—part of the Pediatric Neuromuscular Clinical Research Network (PNCRN) funded by Cure SMA—have published a paper in the […]

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Community Statement from Novartis Gene Therapies

April 23, 2021
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Dear SMA Community, Novartis Gene Therapies is committed to working with our partners in the SMA community to make a difference in the diagnosis, treatment, […]

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Cure SMA Attends Spring 2021 Professional Organization Conferences to Promote Findings from Industry Collaboration Initiatives

April 22, 2021
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Cure SMA is pleased to announce its participation in the 2021 Muscular Dystrophy Association (MDA) Virtual Clinical & Scientific Conference (March 15-18, 2021) and the […]

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Genentech Shares New Evrysdi Data on Improved Motor Function and Survival in Babies with SMA Type 1

April 21, 2021
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Genentech, a member of the Roche Group, has shared new 2-year data from Part 2 of FIREFISH, a Phase 2/3 global study evaluating Evrysdi (risdiplam) […]

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Biogen Shares New Spinraza Data Exploring Opportunities to Improve Outcomes for SMA Patients

April 21, 2021
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Biogen has shared new data from the Spinraza (nusinersen) clinical development program aimed at optimizing outcomes for people with SMA and advancing understanding of the […]

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Participate in Annual Cure SMA Community Update Survey – Open Now!

April 19, 2021
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Last year presented the us with unique challenges, some we are still managing today. However, it has also reinforced the importance of understanding what the […]

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Cure SMA Presents Data on Cure SMA Care Center Network and SMA Clinical Data Registry

April 19, 2021
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Cure SMA’s primary focus is supporting care of the highest value to individuals with SMA. As a result of treatments approved by the U.S. Food […]

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