Front Page News
Biogen SMA Q4 2020 Community Statement
Dear Members of the SMA Community, As we celebrate National Family Caregivers Month this November, Biogen acknowledges the vital role caregivers have in our society, […]
Read More ›Now Available! New COVID-19 PPE Package from Cure SMA
As we continue to quarantine and see a new wave of COVID-19 cases across the country, Cure SMA would like you to know that our […]
Read More ›Results from Annual SMA Community Update Survey Now Published
Each year since 2017, Cure SMA has conducted a Community Update Survey. This online questionnaire is sent to all individuals with spinal muscular atrophy (SMA) […]
Read More ›Cure SMA Announces Two New Virtual Programs for Adults with SMA
Cure SMA is excited to be announcing—along with support from Biogen—the launch of two new programs for adults with SMA. First, we will test your […]
Read More ›Community Spotlight: Sarah Boggess, Research Coordinator, Ornamental Plant Pathology
October has been National Disability Employment Awareness Month, with an official theme of Increasing Access and Opportunity. Throughout the month, we have been posting stories about adults […]
Read More ›Summit of Strength Virtual Webinar Series Continues Its Success!
A little more than six months ago, Cure SMA launched the Summit of Strength Virtual Webinar Series , a program designed to help support individuals […]
Read More ›Cure SMA Immunizations Recommendations During Flu Season and Amidst the COVID-19 Pandemic
Contributors: Dr. Mary Schroth and Dr. Robert Graham Influenza (or flu) is a serious respiratory infection, and people of any age can get it. Since […]
Read More ›Scholar Rock Issues Community Statement with Update on SRK-015 in Patients with Types 2 and 3 SMA
Scholar Rock, a clinical-stage biopharmaceutical company focused on the treatment of serious diseases in which protein growth factors play a fundamental role, today announced 6-month […]
Read More ›Community Spotlight: Perspectives from Spencer Cook, Registered Accessibility Specialist
October is National Disability Employment Awareness Month, with an official theme of Increasing Access and Opportunity. Throughout the month, we have been posting stories about adults with […]
Read More ›Community Spotlight: Kayley Shade of Sioux Falls Storm
October is National Disability Employment Awareness Month, with an official theme of Increasing Access and Opportunity. Throughout the month, we will be posting stories about adults with […]
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