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Cure SMA Launches Physical Therapy Webinar Series

January 15, 2021
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There are plenty of reasons for everyone to exercise regularly, but for the spinal muscular atrophy (SMA) community, exercise has potential benefits in supporting greater […]

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Cure SMA Offer Perspectives on Combination Therapy for SMA

January 8, 2021
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New developments in treatments for spinal muscular atrophy (SMA) over the last few years have changed what is possible for people with SMA, allowing them […]

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Team Cure SMA Launches 2021 Race Series for Full SMA Community

January 5, 2021
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You can get a head start on your healthy New Year’s resolutions and sign up today for our 2021 Team Cure SMA endurance race series! […]

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Cure SMA to Host Webinar Series on Wellness for the SMA Community

January 3, 2021
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With consideration of the current COVID-19 pandemic and beyond, Cure SMA continues to advocate for the importance of overall health and wellness. Therefore, we are […]

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Cure SMA’s New Year Letter for 2021

January 1, 2021
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Dear SMA Community, While 2020 did not pan out as we had expected, Cure SMA remains extremely optimistic about the future for our community in […]

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Genentech End-of-Year Community Statement

December 30, 2020
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Dear SMA Community, As 2020 draws to a close, we want to provide an overview of our recent work in the community over the fourth […]

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Biogen Provides SMA Community Update on DEVOTE Study

December 28, 2020
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Below we have provided an update from Biogen regarding the status of its DEVOTE clinical trial. For more information about SPINRAZA (nusinersen), visit https://www.curesma.org/spinraza/. ++++++++++++++++++++ […]

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Community Spotlight: Brian Chiorello

December 21, 2020
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Brian Chiorello is a Principal Service Delivery Manager at a financial services company near where he lives in Orlando, FL. He resides there with his […]

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Community Spotlight: The Hoskin Family

December 16, 2020
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High school sweethearts, Steven and Amy Hoskin, and their 19-month-old son, Grayson, reside outside Sacramento, CA. Steven describes them as a goofy bunch, always playing […]

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Cure SMA, Novartis Publish Economic Burden of SMA Analysis in Journal of Market Access & Health Policy

December 14, 2020
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Recently, Cure SMA and colleagues at Novartis Gene Therapies published a manuscript titled, “Economic burden of spinal muscular atrophy: an analysis of claims data” in […]

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