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Answering Questions about COVID-19 Vaccination and SMA

December 13, 2020
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To the full spinal muscular atrophy (SMA) community, we want you to know that Cure SMA is continuing to support you with information and resources […]

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Cure SMA Shares Perspective on COVID-19 Vaccination

December 7, 2020
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Dear SMA Community, Although this year has brought with it many challenges, the SMA community continues to demonstrate its strength and resilience. Cure SMA remains […]

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Community Spotlight: Nikki McIntosh

November 25, 2020
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Nikki McIntosh is known as the founder of Rare Mamas, an online resource that supports and empowers mothers who have children with rare diseases. She […]

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Biogen SMA Q4 2020 Community Statement

November 20, 2020
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Dear Members of the SMA Community, As we celebrate National Family Caregivers Month this November, Biogen acknowledges the vital role caregivers have in our society, […]

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Now Available! New COVID-19 PPE Package from Cure SMA

November 18, 2020
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As we continue to quarantine and see a new wave of COVID-19 cases across the country, Cure SMA would like you to know that our […]

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Results from Annual SMA Community Update Survey Now Published

November 5, 2020
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Each year since 2017, Cure SMA has conducted a Community Update Survey. This online questionnaire is sent to all individuals with spinal muscular atrophy (SMA) […]

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Cure SMA Announces Two New Virtual Programs for Adults with SMA

November 1, 2020
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Cure SMA is excited to be announcing—along with support from Biogen—the launch of two new programs for adults with SMA. First, we will test your […]

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Community Spotlight: Sarah Boggess, Research Coordinator, Ornamental Plant Pathology

October 29, 2020
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October has been National Disability Employment Awareness Month, with an official theme of Increasing Access and Opportunity. Throughout the month, we have been posting stories about adults […]

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Summit of Strength Virtual Webinar Series Continues Its Success!

October 29, 2020
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A little more than six months ago, Cure SMA launched the Summit of Strength Virtual Webinar Series , a program designed to help support individuals […]

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Cure SMA Immunizations Recommendations During Flu Season and Amidst the COVID-19 Pandemic

October 28, 2020
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Contributors: Dr. Mary Schroth and Dr. Robert Graham Influenza (or flu) is a serious respiratory infection, and people of any age can get it. Since […]

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