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2020 Virtual SMA Conference Booklet is Now Available Online

June 5, 2020
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Cure SMA is pleased to announce that the 2020 Virtual SMA Conference booklet is now available for download. The booklet includes important details on the […]

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Cure SMA to Fund Network of Prominent SMA Clinical Research and Treatment Centers

June 4, 2020
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In the midst of the ongoing Coronavirus (COVID-19) global pandemic, Cure SMA is excited to announce its new funding for the Pediatric Neuromuscular Clinical Research […]

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Registration Now Open for the 2020 Virtual SMA Conference

May 27, 2020
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Cure SMA has released the agenda and registration details for the 2020 Virtual SMA Conference, which will be held from Monday, June 8th – Friday, […]

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Cure SMA Announces a 2020 Virtual SMA Conference – United, At Home

May 14, 2020
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Cure SMA has been hosting the Annual SMA Conference since 1988, bringing together leading researchers, clinicians, affected individuals, and families living with SMA. The weekend […]

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Cure SMA Announces Summit of Strength Virtual Webinar Series

May 14, 2020
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For the past two years, Cure SMA’s Summit of Strength program has brought together thousands of SMA community members for the opportunity to network and […]

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Biogen Releases Q2 Community Statement on Latest Milestones in Clinical Development Program

May 11, 2020
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Dear Members of the SMA Community, In light of the COVID-19 pandemic and the burden it has placed on our healthcare system, Biogen is working […]

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Update from Scholar Rock on TOPAZ Phase 2 Clinical Trial of SRK-015 in Patients with SMA

May 8, 2020
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Scholar Rock recently reported financial results for the first quarter ending March 31, 2020, highlighting progress and upcoming milestones for its pipeline programs—include the SRK-015 […]

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Genentech’s Risdiplam Shows Significant Improvement in Survival and Motor Milestones in Infants With Type 1 SMA

April 28, 2020
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      Genentech, a member of the Roche Group, today presented 1-year data from FIREFISH Part 2, a pivotal global study evaluating risdiplam in infants aged […]

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Annual Cure SMA Community Update Survey Ready for Your Input

April 23, 2020
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Navigating the recent global health crisis, Coronavirus (COVID-19), has reinforced for us the importance of understanding what the SMA community is thinking, feeling, and experiencing. […]

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Cure SMA Launches New COVID-19 Support Package

April 23, 2020
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Despite the new reality of quarantines, remote working, and social distancing, Cure SMA would like you to know that our work for the SMA community […]

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