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Biogen Plans to Initiate Phase 4 Study Evaluating Benefit of Spinraza in Patients Treated with Zolgensma

July 21, 2020
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Biogen Inc., today announced, it plans to initiate a global Phase 4 clinical study, RESPOND, to examine the clinical benefit and assess the safety of SPINRAZA (nusinersen) […]

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Community Spotlight: Ben Lou’s Formula for Life

June 26, 2020
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Ben Lou is a 17-year-old from San Diego who is fluent in both English and Chinese. He is a math whiz and fascinated by science. […]

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Thank You for a Wonderful 2020 Virtual SMA Conference!

June 18, 2020
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Cure SMA would like to thank everyone who attended last week’s 2020 Virtual SMA Conference! It was an impactful week of online workshops, networking, and […]

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2020 Virtual SMA Conference Booklet is Now Available Online

June 5, 2020
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Cure SMA is pleased to announce that the 2020 Virtual SMA Conference booklet is now available for download. The booklet includes important details on the […]

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Cure SMA to Fund Network of Prominent SMA Clinical Research and Treatment Centers

June 4, 2020
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In the midst of the ongoing Coronavirus (COVID-19) global pandemic, Cure SMA is excited to announce its new funding for the Pediatric Neuromuscular Clinical Research […]

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Registration Now Open for the 2020 Virtual SMA Conference

May 27, 2020
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Cure SMA has released the agenda and registration details for the 2020 Virtual SMA Conference, which will be held from Monday, June 8th – Friday, […]

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Cure SMA Announces a 2020 Virtual SMA Conference – United, At Home

May 14, 2020
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Cure SMA has been hosting the Annual SMA Conference since 1988, bringing together leading researchers, clinicians, affected individuals, and families living with SMA. The weekend […]

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Cure SMA Announces Summit of Strength Virtual Webinar Series

May 14, 2020
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For the past two years, Cure SMA’s Summit of Strength program has brought together thousands of SMA community members for the opportunity to network and […]

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Biogen Releases Q2 Community Statement on Latest Milestones in Clinical Development Program

May 11, 2020
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Dear Members of the SMA Community, In light of the COVID-19 pandemic and the burden it has placed on our healthcare system, Biogen is working […]

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Update from Scholar Rock on TOPAZ Phase 2 Clinical Trial of SRK-015 in Patients with SMA

May 8, 2020
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Scholar Rock recently reported financial results for the first quarter ending March 31, 2020, highlighting progress and upcoming milestones for its pipeline programs—include the SRK-015 […]

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