Front Page News
The Discovery of SMA
In 2016, the spinal muscular atrophy community celebrated the approval of the first-ever treatment that targets the underlying genetic cause of SMA. This was a […]
Read More ›Roche Releases Community Statement on RG7916 and Olesoxime Programs
Roche has provided the following community statement on RG7916 and Olesoxime investigational programs. Dear SMA Community, We are very pleased to share an update of […]
Read More ›Cure SMA Awards $75,000 Grant to Robert Kalb, MD, Northwestern University
Cure SMA has awarded a $75,000 research grant to Robert Kalb, MD, at Northwestern University Feinberg School of Medicine, for his project, “Effects of diminished […]
Read More ›Cure SMA to Host Inaugural Clinical Care Meeting
Clinicians across the country are invited to share experiences, successes and ideas at the inaugural SMA Clinical Care Meeting to be held on Saturday, June 16, […]
Read More ›Cure SMA Awards $150,000 Grant to Umrao Monani, PhD, Columbia University
Cure SMA has awarded a $150,000 research grant to Umrao Monani, PhD, at Columbia University, for his project, “SMA modulators as a means to revealing […]
Read More ›Biogen Announces New Interim Phase 2 Results From NURTURE
Biogen recently announced new interim Phase 2 results from NURTURE, the ongoing open-label, single-arm study evaluating the efficacy and safety of SPINRAZA or nusinersen among […]
Read More ›Cure SMA Launches Second Annual Community Survey to Address Important Issues in SMA Treatment
Dear Members of the SMA Community, For the past several years, we’ve been working to collect data and information on our community’s experiences, goals, hopes, […]
Read More ›Indiana is the Fourth State to Adopt Permanent SMA Screening
Last night, Governor Eric Holcomb of Indiana signed HB 1017, adding spinal muscular atrophy (SMA) and severe combined immunodeficiency (SCID) to the state’s newborn screening […]
Read More ›Cure SMA Awards $150,000 Grant to Allison Ebert, PhD, Medical College of Wisconsin
Cure SMA has awarded a $150,000 research grant to Allison Ebert, PhD, at the Medical College of Wisconsin, for her project, “Role of astrocyte-produced miR-146a […]
Read More ›Awareness is Best Raised When We Work Together
When a loved one is affected by spinal muscular atrophy, whether recently diagnosed or living with SMA for a while, you want to make a […]
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