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Adult Scholarships Offered for the 2018 Annual SMA Conference

December 12, 2017
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Cure SMA is pleased to offer scholarships to the 2018 Annual SMA Conference for all adults with SMA, thanks to a generous grant from The […]

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Cure SMA-Funded Research Results in 21 Published Journal Articles

December 12, 2017
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An important goal of our research funding strategy is to share scientific findings with the broader scientific community. To help accomplish this goal, scientists who […]

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Cytokinetics Publishes Clinical Trial Data for CK-2127107

December 11, 2017
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Cytokinetics, Inc. recently announced the publication of results from three early clinical trials in healthy volunteers that evaluated safety, tolerability, pharmacokinetics, and pharmacodynamics of CK-2127107. […]

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Cure SMA-Funded Researcher, Stephen Kolb, Publishes Paper

November 27, 2017
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Cure SMA-funded researcher Stephen Kolb has published a paper in the journal Annals of Neurology, on the results of a study comparing infants affected by […]

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7th Annual Hope on the Hill Congressional Dinner Achieves $1 Million Milestone

November 20, 2017
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This year’s 7th Annual “Hope on the Hill” Congressional Dinner will be held on Wednesday, November 29, bringing together families, government, and industry to mark […]

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SMA Advocates Testify at Federal Newborn Screening Meeting

November 14, 2017
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On Wednesday, November 8, advocates testified at the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) in support of spinal muscular atrophy newborn […]

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Biogen Issues Community Update on Spinraza

November 7, 2017
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Biogen has provided the following community statement on Spinraza.  Dear Members of the SMA community, As part of our commitment to the SMA community to […]

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2017 World Muscle Society Congress Recap

November 7, 2017
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From October 3rd through October 7th, Cure SMA attended the 22nd International Annual Congress of the World Muscle Society (WMS) in Saint Malo, France. WMS […]

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New Clinical Trial Data Published in New England Journal of Medicine

November 1, 2017
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Two new papers of clinical trial data for spinal muscular atrophy were published today in the November issue of the New England Journal of Medicine […]

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Fall 2017 Issue of Compass Now Available

October 25, 2017
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The fall 2017 issue of Compass is now available online. This issue covers Phase II of the SMA Industry Collaboration, as well as highlights and […]

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