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New Report Highlights Caregiving Challenges of Individuals with Spinal Muscular Atrophy

February 16, 2024
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Cure SMA released a national report on National Caregivers Day that chronicles the caregiving challenges experienced by individuals with spinal muscular atrophy (SMA) and recommends […]

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Cure SMA is Thrilled to Announce the Establishment of our New Chapter in Puerto Rico!

February 7, 2024
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Led by Keishla Rolon, Ramon Rivera Vega, Elizabeth Serrano, Natasha Santiago, and Brenda Luciano, Cure SMA’s Puerto Rico chapter has already been hard at work […]

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100% of States Now Screening Newborns for SMA

January 3, 2024
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You did it!   We’ve now reached our goal of 100 percent newborn screening of spinal muscular atrophy (SMA) in all 50 states with the […]

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Nevada Starts Screening for SMA – Only One State Remains!

December 21, 2023
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Nevada has become the 49th state to begin screening for spinal muscular atrophy (SMA). Nevada State Public Health Laboratory officials confirmed with Cure SMA that […]

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Analysis: Cure SMA’s Risk/Benefit Survey

December 20, 2023
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One of Cure SMA’s top priorities is to relay the SMA community’s treatment experiences and preferences to the United States Food and Drug Administration (FDA). […]

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Winter Immunization Recommendations

December 12, 2023
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Cooler weather serves as a reminder to explore how to keep ourselves healthy through the cold and flu season. What you can do to protect […]

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Novartis Gene Therapies Releases SMA Community Statement

December 11, 2023
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This week, Novartis Gene Therapies released an SMA community statement detailing the progress on enrollment for both STEER and STRENGTH clinical trials, their investigational intrathecal […]

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Genentech Releases SMA Community Letter with Evrysdi (risdiplam) Updates

December 7, 2023
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Our partners at Genentech recently provided an SMA Community Letter regarding Evrysdi® (risdiplam) and their clinical development program. Visit this link to learn more.

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Cure SMA Featured in the NFL’s My Cause My Cleats

December 5, 2023
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Cure SMA is thrilled to have recently been featured in the National Football League’s (NFL) My Cause My Cleats campaign. Through this fantastic initiative, players […]

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Administration Officials & Members of Congress Highlight SMA Community Advocacy at 12th Annual Hope on the Hill Washington, D.C. Event 

December 4, 2023
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Two high-ranking Administration officials and several Members of Congress from key congressional committees participated in Cure SMA’s November 29th Hope on the Hill dinner and […]

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