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Cure SMA Announces Additional Conference Support for Newly Diagnosed Families

December 13, 2016
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Thanks to the generous funding provided by the Erin Trainor Memorial Fund, Cure SMA is now offering additional support for newly diagnosed families to attend […]

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SMA Community Conducts Outreach Visits with Members of Congress

December 12, 2016
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On November 30, members of the SMA community met with 17 different legislative offices— eight from the Senate and nine from the House of Representatives.  […]

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The Lancet Publishes Data from Phase 2, Open-Label Trial of Spinraza (Nusinersen) in Infants

December 7, 2016
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Today, Lancet published results from the Phase 2, open-label trial of nusinersen (Spinraza) in infants. This trial initiated in 2013, and patients continue to receive […]

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The Miller McNeil Woodruff Foundation Makes a Generous Contribution to Cure SMA

December 6, 2016
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The Miller McNeil Woodruff Foundation awarded $87,000 to Cure SMA, in order to further research that will lead to a treatment and cure for SMA. Their gift […]

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Cure SMA-Funded Researcher, Chad Heatwole, Publishes Paper on Clinical Trial Outcomes in Adults with SMA

December 5, 2016
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Cure SMA-funded researcher, Chad Heatwole, and his team, have published a paper, “What Matters Most: A Perspective From Adult Spinal Muscular Atrophy Patients”. This project […]

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Annual Congressional Dinner Brings SMA Community Together on the Eve of 21st Century Cure Bill Passage

December 1, 2016
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On Tuesday, November 29, more than 160 people from the SMA community – including government and industry partners – gathered for the 6th Annual “Hope […]

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Annual South Florida Gala of Hope Raises over $1 Million in 6 Years

November 30, 2016
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The 6th annual Cure SMA South Florida Chapter Gala of Hope raised a record amount of $310,000 on November 17th. Total funds raised by the gala […]

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Help Us Shape the Future Together, and Reach our Goal of $750,000

November 28, 2016
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This has been an historic year for the SMA community. On October 28, our pharmaceutical partners at Biogen and Ionis announced that their New Drug […]

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Over 35 Cure SMA-Funded Researchers Contribute to Comprehensive SMA Encyclopedia

November 22, 2016
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Spinal Muscular Atrophy: Disease Mechanisms and Therapy, the first comprehensive encyclopedia of SMA, has been published by Elsevier. Over thirty five of the book’s authors […]

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Adult Scholarships Offered for the 2017 Annual SMA Conference

November 21, 2016
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Cure SMA is pleased to announced that, thanks to a generous grant from The Dhont Family Foundation, we are offering scholarships to the 2017 Annual […]

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