Front Page News
Clinical and Regulatory Webinar and Extended Q&A Now Available
A recording of last week’s Cure SMA Clinical and Regulatory Webinar is now available online. WATCH Our thanks again to our three panelists—Dr. Tim Franson, […]
Read More ›Fall 2015 Issue of Compass Highlights SMA Researcher Meeting
The latest issue of Compass, our research publication, is now available online. This fall 2015 issue covers our 2015 SMA Researcher Meeting. The researcher meeting […]
Read More ›Cure SMA Medical Advisory Council Meets in Chicago
Members of Cure SMA’s Medical Advisory Council (MAC) have gathered in Chicago for two days of meetings to set the agenda for the care of […]
Read More ›Tell Your Senator to Support Innovations for Healthier Americans
We need your help in contacting your Senators to tell them that legislation promoting innovation and research is extremely important to you and that the […]
Read More ›Cure SMA Welcomes the North Jersey Chapter
Cure SMA is pleased to announce the creation of a new chapter in northern New Jersey, serving families and supporters with zip codes starting with […]
Read More ›Cure SMA and Other Venture Philanthropy Leaders Share Insight at Partnering for Cures Panel
Cure SMA President Kenneth Hobby was a featured panelist at Partnering for Cures, a conference convened by the Milken Institute’s FasterCures initiative. At the event, […]
Read More ›Cytokinetics Announces New Details on Upcoming Phase 2 Trial
Cytokinetics, in collaboration with Astellas, has announced further details about a planned Phase 2 clinical trial of CK-2127107 in patients with spinal muscular atrophy (SMA). […]
Read More ›Cure SMA Publishes Journal Article on the Patient Voice
Cure SMA, along with collaborators from Biogen and the SMA Foundation, have published a paper in the journal BMC Neurology. Over the past year, we’ve […]
Read More ›Cure SMA-Funded Researchers Publish Paper in Journal Pediatrics
Cure SMA-funded researchers Rebecca Hurst Davis and Kathy Swoboda have published a paper, “Responses to Fasting and Glucose Loading in a Cohort of Well Children […]
Read More ›Isis Pharmaceuticals Announces SHINE, an Open-Label Extension Study
Isis Pharmaceuticals, Inc. announced that it has initiated an open-label extension study, SHINE. The SHINE study provides ISIS-SMNRx to infants and children with spinal muscular […]
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