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Cure SMA to Host Clinical and Regulatory Webinar

October 12, 2015
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On Monday, November 9, Cure SMA will be hosting a one-hour webinar on clinical trials and regulatory topics. The webinar will be held at 11:00am […]

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PTC Announces New Clinical Trial Results at World Muscle Congress

October 8, 2015
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PTC Therapeutics, in partnership with Roche and the SMA Foundation, recently announced new results from their ongoing Phase 2 trial of RG7800, a small molecule […]

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Community Update on ISIS-SMNRx from Biogen and Isis

October 7, 2015
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Biogen and Isis Pharmaceuticals recently provided an update on the clinical development of ISIS-SMNRx, which is currently being tested in Phase 3 clinical trials: Dear […]

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New Gene Therapy Results Announced at World Muscle Congress

October 6, 2015
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Nationwide Children’s Hospital/AveXis recently announced new results from their ongoing Phase 1 trial of systemic gene therapy for SMA. Dr. Jerry R. Mendell, Director of […]

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Registration Open for the 2016 SMA Researcher Meeting

October 1, 2015
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Registration is now open for industry and academic researchers to attend our 2016 SMA Researcher Meeting, which will be held June 16-18 in Anaheim, CA, […]

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House of Representatives Passes Ensuring Access to Clinical Trials Act

September 30, 2015
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The House of Representatives has passed the Ensuring Access to Clinical Trials Act of 2015 (EACT). This bill already passed the Senate in July, and […]

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Thank You to Jessica Moyer and Family

September 24, 2015
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A note from Rich Rubenstein, Kenneth Hobby, and the entire Cure SMA team: Cure SMA has had the honor to have Jessica Moyer and her […]

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FDA Engagement Update: The Voices of SMA

September 23, 2015
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Thanks to our vibrant community, August was one of our largest and best awareness months ever, with unprecedented levels of public awareness and outreach for […]

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2015 SMA Researcher Meeting Summary: SMN Partners and Targets, Part 2

September 22, 2015
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We will be posting a series of summaries from our 2015 researcher meeting, highlighting some of the most interesting new developments and discoveries presented there. […]

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2015 SMA Researcher Meeting Summary: SMN Partners and Targets, Part 1

September 14, 2015
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We will be posting a series of summaries from our 2015 researcher meeting, highlighting some of the most interesting new developments and discoveries presented there. […]

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