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15th Annual New England Walk-n-Roll Raises Over $100,000

May 28, 2015
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The 15th Annual New England Chapter Walk-n-Roll was held on Saturday, May 16, at beautiful DCR Wompatuck Park in Hingham, MA. The sun was shining […]

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Cure SMA Receives NIH Grant

May 27, 2015
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For the seventh consecutive year, Cure SMA has received a grant from the National Institutes of Health (NIH) for the SMA Researcher Meeting. This year’s […]

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In Memory of Ken Emerson

May 26, 2015
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Cure SMA mourns the loss of Ken Emerson, volunteer at the Cure SMA National Office. Since his grandson Ryan was diagnosed with SMA type III, […]

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21st Century Cures Unanimously Passes Committee

May 22, 2015
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Yesterday, the 21st Century Cures bill was unanimously passed by the House Energy and Commerce Committee. 21st Century Cures would overhaul how the Food and […]

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Collaborative Ways Cure SMA is Driving Research Results

May 19, 2015
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Much as families in our community often work together to start a chapter, organize an event, or raise awareness of SMA, researchers must work together […]

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Meet the SMA Family that Helped Inspire 21st Century Cures

May 15, 2015
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In a recent update on the 21st Century Cures Initiative, we shared how the SMA community has helped inspire this legistlation. Chairman Fred Upton has […]

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Cytokinetics and Astellas Release Further Details on Upcoming Phase 2 Trial

May 14, 2015
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Cytokinetics, in partnership with Astellas, has officially announced that recruitment will begin in the second half of 2015 for a Phase 2 clinical trial testing […]

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Cure SMA Joins The Research Acceleration and Innovation Network

May 13, 2015
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Cure SMA has become a participating organization of The Research Acceleration and Innovation Network (TRAIN), a program of FasterCures, bringing the total number of venture […]

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Update on SMA-FDA Interactions

May 11, 2015
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The SMA drug pipeline has grown dramatically in just over a decade. Of the 17 programs in the pipeline, seven of these are in clinical […]

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2015 Family Friendly Poster Session Presenters Announced

May 8, 2015
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The Family Friendly Research Poster Session is one of the most anticipated events of our Annual SMA Conference. Each year, Cure SMA invites researchers from […]

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