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Update on Clinical Development of RG7800

May 7, 2015
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F. Hoffman-La Roche, PTC and the SMA Foundation recently provided an update on the clinical development of RG7800, an investigational SMN2 splicing modifier that is […]

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Cure SMA Funds $1.85 Million in New Research Grants in 2014-2015

May 7, 2015
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Over the past few months, Cure SMA has announced a total of $1.85 million in new research funding. Our model is designed to fund both […]

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Cure SMA Announces Additional $445,000 for Nationwide Children’s Hospital Gene Therapy Program led by Brian Kaspar, PhD

May 6, 2015
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Cure SMA, the leading organization dedicated to the treatment and cure of spinal muscular atrophy (SMA), recently provided an additional $445,000 grant toward a gene […]

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New 21st Century Cures Discussion Draft Released

May 5, 2015
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The US House of Representatives Energy and Commerce Committee has released a new 21st Century Cures discussion draft. This is a revised and expanded version […]

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Registration for the 2015 Annual SMA Conference Closes in Two Weeks

April 24, 2015
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The deadline to register for our Annual SMA Conference is just two weeks away. Registration will close on Friday, May 9. Over 1,000 people have […]

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Cure SMA Publishes New Care Series Booklet on Musculoskeletal System

April 20, 2015
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Cure SMA has recently released an updated version of our latest care series booklet, The Musculoskeletal System. As with all our care series booklets, The […]

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Spring 2015 Issue of Compass Now Available

April 10, 2015
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The Spring 2015 issue of Compass is now available online. As part of our most recent round of funding, we made five grants totaling $640,000 […]

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Annual SMA Conference to Feature Panel of Leading SMA Drug Experts

April 9, 2015
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The Annual SMA Conference will bring together well over a thousand families and researchers from around the world. During the conference, several sessions are set […]

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Muscles for Mckenna Gala Raises Over $100,000

April 8, 2015
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Held Friday, March 13, in Philadelphia, the 3rd Annual Muscles for Mckenna Gala has raised an incredible $107,000, and organizers are continuing to take donations […]

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Cure SMA Welcomes the Virginia Chapter

March 27, 2015
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Cure SMA is pleased to announce the creation of a new chapter in Virginia. This chapter will also serve residents of Washington DC. Led by […]

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