Front Page News

21st Century Cures Discussion Document Released

January 28, 2015
Posted in , ,

The US House of Representatives Energy and Commerce Committee has released the 21st Century Cures discussion document. The 21st Century Cures initiative was created to […]

Read More ›

Cure SMA-Funded Researcher Publishes Paper on Critical Issues for SMA Families and Doctors

January 21, 2015
Posted in , ,

Matthew A. Halanski, a Cure SMA-funded researcher from University of Wisconsin – Madison, was the lead author on, “Assessing the Needs of the SMA Population,” […]

Read More ›

Join Cure SMA in Celebrating the International Day of Acceptance

January 19, 2015
Posted in , ,

January 20 is a day dedicated to the social acceptance of disability and to honor the late Annie Hopkins, SMA type II, who is the […]

Read More ›

Roche Buys Trophos to Continue Work on SMA Drug

January 16, 2015
Posted in , ,

Swiss drugmaker Roche has agreed to buy privately-held Trophos. Roche, the third largest pharmaceutical company in the world, will now bring its resources to help […]

Read More ›

Cure SMA Announces New $30,000 Clinical Care Research Grant to Deborah Boroughs at BAYADA Home Health Care

January 14, 2015
Posted in ,

Cure SMA has awarded a $30,000 clinical care grant to Deborah Boroughs, RN, MSN, for her project focusing on caregiver training. Individuals with SMA have […]

Read More ›

Cure SMA Awards $140,000 Grant to Sara Custer, PhD, of Indiana University

January 8, 2015
Posted in , ,

Audrey Lewis founded Families of SMA, now Cure SMA, 30 years ago. Audrey recognized early on the importance of attracting new and talented researchers to […]

Read More ›

Together, We Made History

January 7, 2015
Posted in , , ,

Thanks to you, we raised over $770,000 in the month of December, as part of our annual campaign. The stage is set for historic advances […]

Read More ›

Cure SMA Announces New $50,000 Care Research Grant to Rebecca Davis in the Lab of Dr. Swoboda at University of Utah

December 30, 2014
Posted in ,

Cure SMA has awarded a $50,000 clinical care grant to Rebecca Hurst Davis in the lab of Dr. Kathy Swoboda, for her project focusing on […]

Read More ›

NIH Releases Summary of the SO-SMART Workshop

December 29, 2014
Posted in , , ,

During the Annual SMA Conference in Washington DC this past June, the National Institutes of Health (NIH) hosted a workshop on clinical trial design in […]

Read More ›

Cytokinetics and Astellas Announce New Phase 2 Clinical Trial

December 23, 2014
Posted in , ,

Cytokinetics and Astellas jointly announced plans to begin a Phase 2 clinical trial in 2015 in patients with spinal muscular atrophy. The trial will test […]

Read More ›
Scroll to Top