Latest News
2017 SMA Researcher Meeting Summary: SMA Therapy Development
The Annual SMA Researcher Meeting is the largest research meeting in the world specifically focused on SMA. This year we had a record setting 470 attendees. The goal of the […]
Read More ›2017 SMA Researcher Meeting Summary: Special Session on Fatigue and Muscle Weakness in SMA
The Annual SMA Researcher Meeting is the largest research meeting in the world specifically focused on SMA. This year we had a record setting 470 attendees. The goal of the […]
Read More ›Cure SMA Receives Donation from the Bugenske Family
Cure SMA recently received a donation of 14 special tomato feeder seats and 80 large sheepskin blankets from the Bugenske family. The feeder seats were immediately sent out, and helped […]
Read More ›Cure SMA Arkansas Chapter Announced
Cure SMA is pleased to announce the creation of a new chapter in Arkansas! Led by co-chairpersons Kelly and Jason Alexander (family support), DeAnna and Sean Dillon (fundraising and communications), […]
Read More ›August is SMA Awareness Month!
The SMA community officially recognizes August as Spinal Muscular Atrophy Awareness Month, an effort that Cure SMA has been coordinating since 1996. Throughout August, the community works together to raise […]
Read More ›Biogen Releases Update on Spinraza Access
On Monday, Biogen released an update detailing our community’s progress in gaining access to Spinraza. The latest update shows that significant progress has been made in making Spinraza broadly available […]
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