Latest News

Cure SMA Awards $140,000 Grant to Oliver Gruss, PhD, Rheinische Friedrich-Wilhelms-Universitat Bonn and Utz Fischer, PhD, Julius-Maximilians-Universitat Wurzburg, Germany

May 30, 2017
Posted in ,

Cure SMA has awarded a $140,000 research grant to Drs. Oliver Gruss and Utz Fischer at Rheinische Friedrich-Wilhelms-Universitat Bonn and Julius-Maximilians-Universitat Wurzburg in Germany to study “Regulatory cues modulating the […]

Read More ›

Cytokinetics Receives FDA Orphan Drug Designation for CK-2127107 for SMA

May 19, 2017
Posted in ,

Cytokinetics, Inc. recently announced that the Office of Orphan Products Development of the U.S. Food and Drug Administration (FDA) has granted orphan drug designation to CK-2127107, a next-generation fast skeletal […]

Read More ›

Cure SMA Announces 2017 Family Friendly Poster Session Presenters

May 16, 2017
Posted in ,

We’ve recently seen significant advances in SMA research come to fruition, and with 17 drug programs in development, including five in clinical trials, we are invested to treating all ages, […]

Read More ›

Cure SMA Awards $140,000 Grant to Alberto Kornblihtt, PhD, Universidad de Buenos Aires, Argentina

May 15, 2017
Posted in ,

Cure SMA and FAME (Families of SMA, Argentina) have awarded a $140,000 research grant to Alberto Kornblihtt, PhD, at the Universidad de Buenos Aires, Argentina, for his project, “Epigenetics in […]

Read More ›

RUSP Nomination for SMA Accepted into Evidence Review

May 11, 2017
Posted in , ,

The Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) announced that they have accepted spinal muscular atrophy into the review process for the Recommended Uniform Screening Panel […]

Read More ›

Cure SMA Welcomes Back Biogen as a National Premier Partner for 2017

May 11, 2017
Posted in

Cure SMA is thrilled to welcome Biogen back as a National Premier Partner for 2017. The National Premier Partnership represents the highest level of support for the SMA community. As […]

Read More ›
Scroll to Top