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The Lancet Publishes Data from Phase 2, Open-Label Trial of Spinraza (Nusinersen) in Infants

December 7, 2016
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Today, Lancet published results from the Phase 2, open-label trial of nusinersen (Spinraza) in infants. This trial initiated in 2013, and patients continue to receive the drug.  The results show […]

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The Miller McNeil Woodruff Foundation Makes a Generous Contribution to Cure SMA

December 6, 2016
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The Miller McNeil Woodruff Foundation awarded $87,000 to Cure SMA, in order to further research that will lead to a treatment and cure for SMA. Their gift will also help fund continued […]

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Cure SMA-Funded Researcher, Chad Heatwole, Publishes Paper on Clinical Trial Outcomes in Adults with SMA

December 5, 2016
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Cure SMA-funded researcher, Chad Heatwole, and his team, have published a paper, “What Matters Most: A Perspective From Adult Spinal Muscular Atrophy Patients”. This project was a pilot study funded […]

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Annual Congressional Dinner Brings SMA Community Together on the Eve of 21st Century Cure Bill Passage

December 1, 2016
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On Tuesday, November 29, more than 160 people from the SMA community – including government and industry partners – gathered for the 6th Annual “Hope on the Hill” Congressional Dinner. […]

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Annual South Florida Gala of Hope Raises over $1 Million in 6 Years

November 30, 2016
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The 6th annual Cure SMA South Florida Chapter Gala of Hope raised a record amount of $310,000 on November 17th. Total funds raised by the gala now exceed $1 million in its six […]

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Help Us Shape the Future Together, and Reach our Goal of $750,000

November 28, 2016
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This has been an historic year for the SMA community. On October 28, our pharmaceutical partners at Biogen and Ionis announced that their New Drug Application for Spinraza (nusinersen) was […]

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