Latest News

Cure SMA Joins SMA Europe and TREAT-NMD for Meeting with EMA Regulators

November 10, 2016
Posted in , ,

Cure SMA will be participating in a one-day workshop with The European Medicines Agency (EMA—the European equivalent of the FDA), SMA Europe and TREAT-NMD to discuss, support and advance the […]

Read More ›

Cure SMA to Host Webinar on the New Drug Application Process

November 9, 2016
Posted in , , ,

On Tuesday, December 6, Cure SMA will be hosting a one-hour webinar on the New Drug Application (NDA) process. The webinar will be held at 12:00pm CST (10:00am PST/11:00am MST/1:00pm […]

Read More ›

Biogen and Ionis Community Statement on Interim Analysis of CHERISH (Type 2) Trial

November 7, 2016
Posted in ,

Biogen and Ionis Pharmaceuticals have provided the following community statement regarding the interim analysis of the CHERISH trial: Dear Members of the SMA Community, Today we take another important step […]

Read More ›

Biogen and Ionis Pharmaceuticals Announce SPINRAZA (nusinersen) Meets Primary Endpoint at Interim Analysis of Phase 3 CHERISH Study

November 7, 2016
Posted in ,

Biogen and Ionis Pharmaceuticals announced that SPINRAZA (nusinersen), an investigational treatment for spinal muscular atrophy (SMA), met the primary endpoint at the interim analysis of CHERISH, the Phase 3 study […]

Read More ›

AveXis Announces Single-Arm Design for Pivotal Study of AVXS-101

November 1, 2016
Posted in ,

AveXis, Inc., a clinical-stage gene therapy company developing treatments for patients suffering from rare and life-threatening neurological genetic diseases, today announced that the planned pivotal study of AVXS-101 in spinal […]

Read More ›

Family Registration for the 2017 Annual SMA Conference is Now Open

November 1, 2016
Posted in ,

Registration is now open for the 2017 Annual SMA Conference! The conference will be held at Disney’s Contemporary Resort at Disney World in Orlando, FL, from Thursday, June 29, through […]

Read More ›
Scroll to Top