Latest News
Patients and Caregivers of Patients with Type II and III SMA Needed for Educational Research Survey
I am a medical education researcher fielding a survey to individuals or caregivers of individuals with Type II or III spinal muscular atrophy (SMA) to understand their specific challenges as […]
Read More ›2016 Annual SMA Conference on Track to Break Attendance Records
Registration for the Annual SMA Conference is well on its way to a record-setting number. Over 700 families and researchers have registered for the conference thus far—the highest number to […]
Read More ›Cure SMA Awards $140,000 Grant to Rashmi Kothary, MD, Ottawa Hospital Research Institute
Cure SMA has awarded a $140,000 research grant to Rashmi Kothary, MD, at the Ottawa Hospital Research Institute for his project, ” Muscle satellite cell biology and muscle regeneration in […]
Read More ›Cure SMA Awards $140,000 Grant to Megerditch Kiledjian, PhD, of Rutgers
Cure SMA has awarded a $140,000 research grant to Megerditch Kiledjian, PhD, at Rutgers, The State University of New Jersey, for his project, “Novel Strategies to Increase SMN2 RNA.” Because […]
Read More ›Senate HELP Committee Passes Innovation Bills
The Senate Health, Education, Labor and Pensions (HELP) Committee has passed 7 bills out of committee as part of its “step-by-step” approach to Innovation and 21st Century Cures. Among them […]
Read More ›Update on 21st Century Cures/Innovation: the Senate’s “Step-by-Step” Approach
Cure SMA has been carefully monitoring the consideration of 21st Century Cures on Capitol Hill. As you know, the House passed legislation in July last year, but the Senate has […]
Read More ›