Latest News
Cure SMA Medical Advisory Council Meets in Chicago
Members of Cure SMA’s Medical Advisory Council (MAC) have gathered in Chicago for two days of meetings to set the agenda for the care of SMA individuals and families. Our […]
Read More ›Tell Your Senator to Support Innovations for Healthier Americans
We need your help in contacting your Senators to tell them that legislation promoting innovation and research is extremely important to you and that the discovery of the next generation […]
Read More ›Cure SMA Welcomes the North Jersey Chapter
Cure SMA is pleased to announce the creation of a new chapter in northern New Jersey, serving families and supporters with zip codes starting with 07, 085, 086, 087, and […]
Read More ›Cure SMA and Other Venture Philanthropy Leaders Share Insight at Partnering for Cures Panel
Cure SMA President Kenneth Hobby was a featured panelist at Partnering for Cures, a conference convened by the Milken Institute’s FasterCures initiative. At the event, over 700 research innovators—including senior […]
Read More ›Cytokinetics Announces New Details on Upcoming Phase 2 Trial
Cytokinetics, in collaboration with Astellas, has announced further details about a planned Phase 2 clinical trial of CK-2127107 in patients with spinal muscular atrophy (SMA). CK-2127107 is a skeletal muscle […]
Read More ›Cure SMA Publishes Journal Article on the Patient Voice
Cure SMA, along with collaborators from Biogen and the SMA Foundation, have published a paper in the journal BMC Neurology. Over the past year, we’ve completed 16 focus group sessions […]
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