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Cure SMA Medical Advisory Council Meets in Chicago

November 6, 2015
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Members of Cure SMA’s Medical Advisory Council (MAC) have gathered in Chicago for two days of meetings to set the agenda for the care of SMA individuals and families. Our […]

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Tell Your Senator to Support Innovations for Healthier Americans

November 4, 2015
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We need your help in contacting your Senators to tell them that legislation promoting innovation and research is extremely important to you and that the discovery of the next generation […]

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Cure SMA Welcomes the North Jersey Chapter

November 4, 2015
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Cure SMA is pleased to announce the creation of a new chapter in northern New Jersey, serving families and supporters with zip codes starting with 07, 085, 086, 087, and […]

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Cure SMA and Other Venture Philanthropy Leaders Share Insight at Partnering for Cures Panel

November 3, 2015
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Cure SMA President Kenneth Hobby was a featured panelist at Partnering for Cures, a conference convened by the Milken Institute’s FasterCures initiative. At the event, over 700 research innovators—including senior […]

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Cytokinetics Announces New Details on Upcoming Phase 2 Trial

October 30, 2015
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Cytokinetics, in collaboration with Astellas, has announced further details about a planned Phase 2 clinical trial of CK-2127107 in patients with spinal muscular atrophy (SMA). CK-2127107 is a skeletal muscle […]

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Cure SMA Publishes Journal Article on the Patient Voice

October 27, 2015
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Cure SMA, along with collaborators from Biogen and the SMA Foundation, have published a paper in the journal BMC Neurology. Over the past year, we’ve completed 16 focus group sessions […]

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