Latest News
In Memory of Ken Emerson
Cure SMA mourns the loss of Ken Emerson, volunteer at the Cure SMA National Office. Since his grandson Ryan was diagnosed with SMA type III, Ken became everyone’s favorite visitor […]
Read More ›21st Century Cures Unanimously Passes Committee
Yesterday, the 21st Century Cures bill was unanimously passed by the House Energy and Commerce Committee. 21st Century Cures would overhaul how the Food and Drug Administration evaluates new medical […]
Read More ›Collaborative Ways Cure SMA is Driving Research Results
Much as families in our community often work together to start a chapter, organize an event, or raise awareness of SMA, researchers must work together in order to find the […]
Read More ›Meet the SMA Family that Helped Inspire 21st Century Cures
In a recent update on the 21st Century Cures Initiative, we shared how the SMA community has helped inspire this legistlation. Chairman Fred Upton has been a guest at our […]
Read More ›Cytokinetics and Astellas Release Further Details on Upcoming Phase 2 Trial
Cytokinetics, in partnership with Astellas, has officially announced that recruitment will begin in the second half of 2015 for a Phase 2 clinical trial testing CK-2127107, a muscle activator. This […]
Read More ›Cure SMA Joins The Research Acceleration and Innovation Network
Cure SMA has become a participating organization of The Research Acceleration and Innovation Network (TRAIN), a program of FasterCures, bringing the total number of venture philanthropies in TRAIN to 80. […]
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