Latest News
Cure SMA Annual Campaign Sets $1 Million Goal
When our year-end campaign began in mid-November, we set an initial goal of raising $540,000. Our community quickly met that challenge, so we increased our goal to $750,000—the most ever […]
Read More ›Updates on Pharmaceutical Companies Investing in SMA Drug Development
Over the past decade, one of the most important advances in SMA drug development has been the number of pharmaceutical companies investing in treatments for SMA. Ten years ago, we […]
Read More ›10th Annual Grant Sheppard Memorial Scramble Reaches Milestone Year
On Friday, August 22, 2014, the 10th Annual Grant Sheppard Memorial Scramble for SMA was held at Hickory Hills Country Club in Chilton, Wisconsin. This golf event is in memory […]
Read More ›Cure SMA Awards $140,000 Grant to Francesco Lotti, PhD, of Columbia University
Cure SMA has awarded a $140,000 research grant to Francesco Lotti, PhD, at Columbia University, for his project, “Role of Sumoylation in SMN Function and SMA Pathology.” Survival motor neuron […]
Read More ›21st Century Cures Discussion Document Released
The US House of Representatives Energy and Commerce Committee has released the 21st Century Cures discussion document. The 21st Century Cures initiative was created to investigate how the government can […]
Read More ›Cure SMA-Funded Researcher Publishes Paper on Critical Issues for SMA Families and Doctors
Matthew A. Halanski, a Cure SMA-funded researcher from University of Wisconsin – Madison, was the lead author on, “Assessing the Needs of the SMA Population,” an article recently published in […]
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