Latest News
Cure SMA Announces New $50,000 Care Research Grant to Rebecca Davis in the Lab of Dr. Swoboda at University of Utah
Cure SMA has awarded a $50,000 clinical care grant to Rebecca Hurst Davis in the lab of Dr. Kathy Swoboda, for her project focusing on blood sugar levels in SMA. […]
Read More ›NIH Releases Summary of the SO-SMART Workshop
During the Annual SMA Conference in Washington DC this past June, the National Institutes of Health (NIH) hosted a workshop on clinical trial design in SMA for drug developers, clinical […]
Read More ›Fall 2014 Issue of Directions Now Online
The Fall 2014 issue of Directions is now available. Directions, our biannual family support newsletter, builds our community by sharing stories and experiences. Families from all over the world connect […]
Read More ›Cytokinetics and Astellas Announce New Phase 2 Clinical Trial
Cytokinetics and Astellas jointly announced plans to begin a Phase 2 clinical trial in 2015 in patients with spinal muscular atrophy. The trial will test CK-2127107, a muscle activator. CK-2127107 […]
Read More ›Help Us Make History with $750,000 for SMA Research
Just over a month ago, we announced a year-end goal of $540,000 to help fund SMA research and family support. Thanks to the generosity of our community, we’re well on […]
Read More ›Cure SMA Launches Survey on Family Support Programs
We’ve just launched a survey to help determine the value and success of our family support and patient services programs. This survey is open to individuals affected by SMA, as […]
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