Latest News
Spinal Muscular Atrophy Biomarker Study Reaches Enrollment Goals
We’re excited to announce that enrollment for the NeuroNEXT biomarker study is now fully filled. This means that this critical study can continue to progress and teach us more about […]
Read More ›Urge Your Senators to Support Passage of the Newborn Screening Saves Lives Reauthorization Act
The Newborn Screening Saves Lives Reauthorization Act (H.R. 1281) passed the House of Representatives this summer but still has not yet received a vote in the Senate. Cure SMA encourages […]
Read More ›Applications for the Cure SMA Medical Advisory Board Due 10/1/14
Cure SMA is expanding its role in spinal muscular atrophy medical affairs at the national level through its Medical Advisory Council (MAC). The MAC sets the agenda for proactive, creative, […]
Read More ›RFP Closes for Spinal Muscular Atrophy Basic Research Funding
On September 5, we announced the close of our for request for proposals (RFP) for basic research. An RFP is an invitation for scientists to submit their best ideas for SMA […]
Read More ›SMA Researchers Talk About the Importance of the Spinal Muscular Atrophy Research Group Meeting
Originally published on August 12, 2014. The SMA research group meeting, held each year as part of our Annual SMA Conference, is an anticipated event in the SMA research community. […]
Read More ›Cure SMA Releases Keynote Speeches and Drug Companies Summaries from The 2014 Annual Spinal Muscular Atrophy Conference
Originally published on June 27, 2014. The 2014 SMA Conference brought together over 1,400 families and 250 researchers from around the world. At the conclusion of the conference, families gathered […]
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