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Biogen Releases Q1 2023 Community Statement

May 15, 2023
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Biogen recently issued a Q1 SMA Community Statement. Check it out here!

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Biogen Announces New Updates Across its SMA Research Program at 2023 MDA Conference

April 11, 2023
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First patient treated in the ASCEND study evaluating the potential benefit of investigational higher dose nusinersen in children, teens and adults previously treated with Evrysdi® (risdiplam) Baseline characteristics indicate all nine […]

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Novartis shares Zolgensma long-term data demonstrating sustained durability up to 7.5 years post-dosing; 100% achievement of all assessed milestones in children treated prior to SMA symptom onset

April 11, 2023
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Children in LT-001 treated after SMA symptom onset maintained or achieved additional milestones up to 7.5 years post one-time intravenous infusion All children (100%) in the presymptomatic intravenous cohort of […]

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Cure SMA Awards $100,000 Grant to Saravanan Arumugam, PhD, Universidad de Seville

April 5, 2023
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Saravanan Arumugam, PhD, was awarded $100,000 for his research project, “Role of Cytosolic and Mitochondrial Ca2+ in the Pathogenesis of Spinal Muscular Atrophy.” Dr. Arumugam’s basic research grant is one […]

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Cure SMA Announces Expanded Phase 8 of SMA Industry Collaboration

April 4, 2023
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Cure SMA is pleased to announce the launch of an expanded Phase 8 of our SMA Industry Collaboration. The SMA Industry Collaboration is a multi-faceted partnership that brings together pharmaceutical companies, […]

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Congress Examines Ways to Improve Air Travel for People with Disabilities

March 24, 2023
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The air travel challenges of people with disabilities took center-stage this week in Congress through two separate congressional hearings. Cure SMA used the congressional action to once again highlight the […]

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